Abstract：
At present, there is no internationally accepted set of core outcomes or measurement methods for epilepsy clinical practice. Therefore, the International Consortium for Health Outcomes Measurement (ICHOM) convened an international working group of experts in epilepsy, people with epilepsy and their representatives to develop minimum sets of standardized outcomes and outcomes measurement methods for clinical practice that support patient-clinician decision-making and quality improvement. Consensus methods identified 20 core outcomes. Measurement tools were recommended based on their evidence of strong clinical measurement properties, feasibility, and cross-cultural applicability. The essential outcomes included many non-seizure outcomes: anxiety, depression, suicidality, memory and attention, sleep quality, functional status, and the social impact of epilepsy. The proposed set will facilitate the implementation of the use of patient-centered outcomes in daily practice, ensuring holistic care. They also encourage harmonization of outcome measurement, and if widely implemented should reduce the heterogeneity of outcome measurement, accelerate comparative research, and facilitate quality improvement efforts.
摘要：
目前,对于癫痫的临床实践,目前尚无一套国际公认的核心结局或测量方法.因此,国际健康结果测量协会（ICHOM）召集了一个国际癫痫专家工作组，癫痫患者及其代表为临床实践制定最低限度的标准化结局和结局测量方法，以支持患者-临床医生的决策和质量改进。共识方法确定了20个核心成果。基于其强大的临床测量特性的证据，推荐了测量工具。可行性,和跨文化适用性。基本结果包括许多非癫痫发作的结果：焦虑，抑郁症,自杀,记忆和注意力，睡眠质量,功能状态，以及癫痫的社会影响。拟议的集合将有助于在日常实践中实施以患者为中心的结果，确保整体护理。它们还鼓励协调成果计量，如果广泛实施，应该减少结果测量的异质性，加快比较研究，并促进质量改进工作。
