关键词: American Academy of Dermatology (AAD) Atopic dermatitis Chronic disease Educational materials Multidisciplinary team National Eczema Association (NEA) Nurse-led workshops Patient education Ssocial media Support groups Technology in patient education Teledermatology Treatment regimen

Mesh : Humans Dermatitis, Atopic / therapy Patient Education as Topic / methods Social Media

来  源:   DOI:10.1007/978-3-031-54513-9_17

Abstract:
There has been an influx of new educational resources for atopic dermatitis (AD) patients in recent years. The two primary organizations in the United States offering educational materials, online resources, and other forms of support include the National Eczema Association (NEA) and the American Academy of Dermatology (AAD). Educational workshops and interventions have emerged as tools that can deliver comprehensive information on AD, such as symptoms, treatments, and disease management. In regard to these workshops, studies have proven longer interventions to be more effective. Studies have also found multidisciplinary teams, including psychologists, dietitians, and AD specialists, to be more effective in AD treatment and education. Additionally, video-based education was found to be the most effective delivery medium compared to various written modes of education. Given the psychosocial impacts of AD, support groups have been found to improve life quality and decrease disease severity, with age-specific groups offering the greatest benefits. Technology such as social media and smartphones has also improved education. Social media has allowed the rapid exchange of information to wider audiences, but due to its unregulated nature, false information has also been disseminated. Despite this, web-based interventions have still been found to be satisfying, convenient, and effective in increasing treatment awareness. The advent of smartphone applications has provided patients with access to information on AD symptoms and treatment on demand. While the effectiveness of these promising applications hasn\'t been confirmed by studies, patient provider interactions via smartphone (teledermatology) have been found to be as effective as in-person appointments. This chapter will discuss these different types of emerging resources available to AD patients including educational materials, interventions, support groups, organizational support, and technological resources and their effectiveness.
摘要:
近年来,特应性皮炎(AD)患者的新教育资源大量涌入。美国提供教育材料的两个主要组织,在线资源,和其他形式的支持包括国家湿疹协会(NEA)和美国皮肤病学会(AAD)。教育讲习班和干预措施已成为可以提供有关AD的全面信息的工具,如症状,治疗,和疾病管理。关于这些讲习班,研究已经证明,干预时间更长更有效。研究还发现了多学科团队,包括心理学家,营养师,和AD专家,在AD治疗和教育中更有效。此外,与各种书面教育模式相比,基于视频的教育被认为是最有效的交付媒介。鉴于AD的社会心理影响,已发现支持团体可改善生活质量并降低疾病严重程度,特定年龄的群体提供最大的好处。社交媒体和智能手机等技术也改善了教育。社交媒体使更广泛的受众能够快速交换信息,但是由于其不受管制的性质,虚假信息也被传播。尽管如此,基于网络的干预措施仍然令人满意,方便,并有效提高治疗意识。智能手机应用程序的出现为患者提供了对AD症状和按需治疗的信息的访问。虽然这些有希望的应用的有效性尚未得到研究的证实,通过智能手机(远程皮肤病学)与患者提供者互动已被发现与面对面预约一样有效.本章将讨论AD患者可用的这些不同类型的新兴资源,包括教育材料,干预措施,支持团体,组织支持,和技术资源及其有效性。
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