PDF(Pubmed)
Abstract：
OBJECTIVE: This study aimed to investigate the caregiving behaviours and supportive needs of caregivers of patients with HIV/AIDS and provide a basis for healthcare institutions to carry out caregiver interventions.
METHODS: A purposive sampling method was used to select 11 caregivers of patients with HIV/AIDS in the Infectious Disease Department of a tertiary hospital in Nanjing, China, to conduct semistructured interviews. Colaizzi analysis was used to collate and analyse the interview data.
METHODS: All interviews were conducted at a tertiary hospital specialising in infectious diseases in Nanjing, Jiangsu Province.
METHODS: We purposively sampled 11 caregivers of people with HIV/AIDS, including nine women and two men.
RESULTS: Analysing the results from the perspective of iceberg theory, three thematic layers were identified: behavioural, value and belief. The behavioural layer includes a lack of awareness of the disease, physical and mental coping disorders, and an increased sense of stigma; the values layer includes a heightened sense of responsibility, the constraints of traditional gender norms, the influence of strong family values and the oppression of public opinion and morality and the belief layer includes the faith of standing together through storms and stress.
CONCLUSIONS: Healthcare professionals should value the experiences of caregivers of patients with HIV/AIDS and provide professional support to improve their quality of life.
METHODS: A purposive sampling method was used to select 11 caregivers of patients with HIV/AIDS in the Infectious Disease Department of a tertiary hospital in Nanjing, China, to conduct semistructured interviews. Colaizzi analysis was used to collate and analyse the interview data.
METHODS: All interviews were conducted at a tertiary hospital specialising in infectious diseases in Nanjing, Jiangsu Province.
METHODS: We purposively sampled 11 caregivers of people with HIV/AIDS, including nine women and two men.
RESULTS: Analysing the results from the perspective of iceberg theory, three thematic layers were identified: behavioural, value and belief. The behavioural layer includes a lack of awareness of the disease, physical and mental coping disorders, and an increased sense of stigma; the values layer includes a heightened sense of responsibility, the constraints of traditional gender norms, the influence of strong family values and the oppression of public opinion and morality and the belief layer includes the faith of standing together through storms and stress.
CONCLUSIONS: Healthcare professionals should value the experiences of caregivers of patients with HIV/AIDS and provide professional support to improve their quality of life.
摘要：
目的：本研究旨在调查HIV/AIDS患者照顾者的照顾行为和支持需求，为医疗机构开展照顾者干预提供依据。
方法:采用目的性抽样的方法,选取南京市某三甲医院感染科11名HIV/AIDS患者的照顾者,中国,进行半结构化面试。Colaizzi分析用于整理和分析访谈数据。
方法：所有访谈均在南京某三级传染病专科医院进行，江苏省。
方法：我们有目的地对11名艾滋病毒/艾滋病患者的照顾者进行了抽样，其中包括9名女性和2名男性。
结果：从冰山理论的角度分析结果，确定了三个主题层：行为，价值和信念。行为层包括缺乏对疾病的认识，身体和精神应对障碍，和增加的污名感；价值观层包括增强的责任感，传统性别规范的约束，强大的家庭价值观的影响以及舆论道德和信仰层的压迫，包括在风暴和压力中站在一起的信念。
结论：医疗保健专业人员应重视HIV/AIDS患者照顾者的经验，并提供专业支持以改善他们的生活质量。
方法:采用目的性抽样的方法,选取南京市某三甲医院感染科11名HIV/AIDS患者的照顾者,中国,进行半结构化面试。Colaizzi分析用于整理和分析访谈数据。
方法：所有访谈均在南京某三级传染病专科医院进行，江苏省。
方法：我们有目的地对11名艾滋病毒/艾滋病患者的照顾者进行了抽样，其中包括9名女性和2名男性。
结果：从冰山理论的角度分析结果，确定了三个主题层：行为，价值和信念。行为层包括缺乏对疾病的认识，身体和精神应对障碍，和增加的污名感；价值观层包括增强的责任感，传统性别规范的约束，强大的家庭价值观的影响以及舆论道德和信仰层的压迫，包括在风暴和压力中站在一起的信念。
结论：医疗保健专业人员应重视HIV/AIDS患者照顾者的经验，并提供专业支持以改善他们的生活质量。
