Abstract：
The role of the social, physical, and organisational environments in shaping how patients and their caregivers perform work remains largely unexplored in human factors/ergonomics literature. This study recruited 19 dyads consisting of a parent and their child with type 1 diabetes to be interviewed individually and analysed using a macroergonomic framework. Our findings aligned with the macroergonomic factors as presented in previous models, while highlighting the need to expand upon certain components to gain a more comprehensive representation of the patient work system as relevant to dyadic management. Examples of design efforts that should follow from these findings include expanding existing data sharing options to include information from the external environment and capitalising on the capabilities of artificial intelligence as a decision support system. Future research should focus on longitudinally assessing patient work systems throughout transition periods in addition to more explicitly exploring the roles of social network members.
Work performed by patients and their caregivers is shaped by the social, physical, and organisational contexts they are embedded within. This paper explored how adolescents with type 1 diabetes managed their health alongside their parents in the context of these macroergonomic factors. These findings have implications for research and design.
Work performed by patients and their caregivers is shaped by the social, physical, and organisational contexts they are embedded within. This paper explored how adolescents with type 1 diabetes managed their health alongside their parents in the context of these macroergonomic factors. These findings have implications for research and design.
摘要：
社会的作用，物理，和组织环境在塑造患者和他们的照顾者如何执行工作仍然在很大程度上没有探索在人为因素/人体工程学文献。这项研究招募了19个由父母和他们患有1型糖尿病的孩子组成的二元组，分别接受采访，并使用宏观工效学框架进行分析。我们的发现与以前模型中提出的宏观工效学因素相一致，同时强调需要扩展某些组件，以获得与二元管理相关的患者工作系统的更全面表示。这些发现应遵循的设计工作的示例包括扩展现有的数据共享选项，以包括来自外部环境的信息，并利用人工智能作为决策支持系统的能力。除了更明确地探索社交网络成员的角色外，未来的研究还应侧重于在整个过渡时期纵向评估患者工作系统。
病人和他们的照顾者所做的工作是由社会，物理，以及它们嵌入其中的组织环境。本文探讨了在这些宏观工效学因素的背景下，患有1型糖尿病的青少年如何与父母一起管理健康。这些发现对研究和设计具有重要意义。
病人和他们的照顾者所做的工作是由社会，物理，以及它们嵌入其中的组织环境。本文探讨了在这些宏观工效学因素的背景下，患有1型糖尿病的青少年如何与父母一起管理健康。这些发现对研究和设计具有重要意义。
