关键词: Acute leukemia Anxiety Caregiver Caregiving capacity Family empowerment Illness uncertainty

来  源:   DOI:10.1186/s12912-024-01973-2   PDF(Pubmed)

Abstract:
BACKGROUND: Family-centered empowerment programs have been widely used in the pediatric field. Therefore, the current study investigated the effectiveness of family empowerment programs on caregiving ability and adverse mood among caregivers of children with acute leukemia.
OBJECTIVE: To evaluate the effect of a family empowerment program on the caregiving ability and adverse mood of caregivers of children with acute leukemia.
METHODS: Sixty-eight children with acute leukemia and their family caregivers admitted to our hospital were selected for the study. The control group received routine care during hospitalization, and the family empowerment program was implemented in the intervention group to compare the changes in caregiving capacity (FCTI), illness uncertainty (PPUS) and anxiety(SAS)of the caregivers of the two groups.
RESULTS: After 8 weeks of intervention, the FCTI score of the intervention group was significantly lower than that of the control group (P < 0.001), and the difference between the scores before and after the intervention was statistically significant (P < 0.001); the PPUS score of the intervention group was significantly lower than that of the control group (P < 0.05), and the difference between the scores before and after the intervention was statistically significant (P < 0.001); the SAS score of the intervention group was lower than that of the control group after intervention(P < 0.05), and the score difference before and after intervention was statistically significant (P < 0.001).
CONCLUSIONS: Family empowerment program is beneficial in improving caregiving capacity and reducing disease uncertainty and anxiety among caregivers of children with acute leukemia.
BACKGROUND: Chinese Clinical Trial Registry ChiCTR2300073476 2023-07-12 Retrospectively registered.
摘要:
背景:以家庭为中心的赋权计划已广泛用于儿科领域。因此,本研究调查了家庭授权计划对急性白血病儿童照顾者的照顾能力和不良情绪的有效性.
目的:评估家庭授权计划对急性白血病儿童照顾者的照顾能力和不良情绪的影响。
方法:选取我院收治的68例急性白血病患儿及其家庭照顾者作为研究对象。对照组住院期间接受常规护理,并在干预组中实施家庭赋权计划,以比较护理能力(FCTI)的变化,两组护理人员的疾病不确定感(PPUS)和焦虑(SAS)。
结果:干预8周后,干预组FCTI评分明显低于对照组(P<0.001),干预前后各项评分比较差异有统计学意义(P<0.001);干预组PPUS评分明显低于对照组(P<0.05),干预前后评分差异有统计学意义(P<0.001);干预后干预组SAS评分低于对照组(P<0.05),干预前后得分差异有统计学意义(P<0.001)。
结论:家庭授权计划有利于提高急性白血病患儿照顾者的照顾能力,减少疾病不确定感和焦虑。
背景:中国临床试验注册ChiCTR23000734762023-07-12回顾性注册。
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