PDF(Pubmed)
Abstract：
BACKGROUND: Decisions surrounding the permanent residential care placement of people living with dementia can be stressful and distressing; however, providing access to targeted information and support prior to placement may help carers better cope. This mixed methods study aimed to test the feasibility, acceptability, and potential benefits of providing a tailored, individual counselling program (the Residential Care Transition Module), delivered via videoconferencing, to Australian family carers of a relative with dementia during the transition to permanent residential care.
METHODS: A total of 18 family carers were randomly allocated to receive either the counselling intervention (six sessions delivered over 12 weeks) or a check-in call, delivered by a trained Transition Counsellor. Both groups received help-sheets about residential care, coping with placement, and managing feelings. Carers completed online surveys about stress, guilt, anxiety, depression, grief, and support for caring at baseline and four months post-baseline. Carers were also invited to participate in semi-structured exit interviews, conducted after follow-up surveys were completed. Process data relating to recruitment, retention, intervention dose and delivery were collected via logs. Quantitative data were analysed using descriptive statistics and repeated measures ANOVA. Qualitative data, relating to feasibility, acceptability, and perceived benefits of the program, were analysed using the \'framework\' approach developed by the Medical Research Council to inform the process evaluation of complex interventions.
RESULTS: Qualitative findings indicated that delivery of the counselling program during the transition period was deemed by participants to be feasible and acceptable. Delivery via videoconferencing was deemed convenient and acceptable, with few technical issues. The skills and knowledge of the Transition Counsellor were perceived to be important mechanisms of impact. Though not statistically significant, promising quantitative findings were identified in terms of reduced carer stress and guilt and improved support for caring.
CONCLUSIONS: Delivery of a tailored counselling program via videoconferencing to family carers of people living with dementia during the transition to residential care was feasible and acceptable. The program has the potential to improve transitional support to family carers.
BACKGROUND: This study was registered in the Australian New Zealand Clinical Trials Registry: ACTRN12621001462875.
METHODS: A total of 18 family carers were randomly allocated to receive either the counselling intervention (six sessions delivered over 12 weeks) or a check-in call, delivered by a trained Transition Counsellor. Both groups received help-sheets about residential care, coping with placement, and managing feelings. Carers completed online surveys about stress, guilt, anxiety, depression, grief, and support for caring at baseline and four months post-baseline. Carers were also invited to participate in semi-structured exit interviews, conducted after follow-up surveys were completed. Process data relating to recruitment, retention, intervention dose and delivery were collected via logs. Quantitative data were analysed using descriptive statistics and repeated measures ANOVA. Qualitative data, relating to feasibility, acceptability, and perceived benefits of the program, were analysed using the \'framework\' approach developed by the Medical Research Council to inform the process evaluation of complex interventions.
RESULTS: Qualitative findings indicated that delivery of the counselling program during the transition period was deemed by participants to be feasible and acceptable. Delivery via videoconferencing was deemed convenient and acceptable, with few technical issues. The skills and knowledge of the Transition Counsellor were perceived to be important mechanisms of impact. Though not statistically significant, promising quantitative findings were identified in terms of reduced carer stress and guilt and improved support for caring.
CONCLUSIONS: Delivery of a tailored counselling program via videoconferencing to family carers of people living with dementia during the transition to residential care was feasible and acceptable. The program has the potential to improve transitional support to family carers.
BACKGROUND: This study was registered in the Australian New Zealand Clinical Trials Registry: ACTRN12621001462875.
摘要：
背景：围绕痴呆症患者的永久住宿护理安置的决定可能会带来压力和痛苦；但是，在安置前提供有针对性的信息和支持可能有助于护理人员更好地应对。本混合方法研究旨在检验其可行性，可接受性,以及提供量身定制的潜在好处，个人咨询计划(住宅护理过渡模块)，通过视频会议交付，在向永久住宿护理过渡期间，向患有痴呆症的亲戚的澳大利亚家庭照顾者。
方法：共有18名家庭照顾者被随机分配接受咨询干预（在12周内进行了6次治疗）或入住电话。由训练有素的过渡顾问提供。两组都收到了有关住宿护理的帮助单，应对安置，管理感情。护理人员完成了关于压力的在线调查，内疚，内疚焦虑,抑郁症,悲伤,并支持基线和基线后四个月的护理。看护人员亦获邀参加半结构化离职面谈,在完成后续调查后进行。与招聘有关的过程数据，保留,干预剂量和分娩通过日志收集。使用描述性统计和重复测量ANOVA分析定量数据。定性数据，关于可行性，可接受性,以及该计划的感知好处，使用医学研究理事会开发的“框架”方法进行分析，以告知复杂干预措施的过程评估。
结果：定性研究结果表明，参与者认为在过渡期内实施咨询计划是可行和可接受的。通过视频会议交付被认为是方便和可接受的，技术问题很少。过渡顾问的技能和知识被认为是重要的影响机制。虽然没有统计学意义，在减少护理人员的压力和负罪感以及改善对护理的支持方面，确定了有希望的定量结果。
结论：在向住院护理过渡期间，通过视频会议向痴呆症患者的家庭照顾者提供量身定制的咨询计划是可行且可接受的。该计划有可能改善对家庭照顾者的过渡支持。
背景：本研究在澳大利亚新西兰临床试验注册中心ACTRN12621001462875注册。
方法：共有18名家庭照顾者被随机分配接受咨询干预（在12周内进行了6次治疗）或入住电话。由训练有素的过渡顾问提供。两组都收到了有关住宿护理的帮助单，应对安置，管理感情。护理人员完成了关于压力的在线调查，内疚，内疚焦虑,抑郁症,悲伤,并支持基线和基线后四个月的护理。看护人员亦获邀参加半结构化离职面谈,在完成后续调查后进行。与招聘有关的过程数据，保留,干预剂量和分娩通过日志收集。使用描述性统计和重复测量ANOVA分析定量数据。定性数据，关于可行性，可接受性,以及该计划的感知好处，使用医学研究理事会开发的“框架”方法进行分析，以告知复杂干预措施的过程评估。
结果：定性研究结果表明，参与者认为在过渡期内实施咨询计划是可行和可接受的。通过视频会议交付被认为是方便和可接受的，技术问题很少。过渡顾问的技能和知识被认为是重要的影响机制。虽然没有统计学意义，在减少护理人员的压力和负罪感以及改善对护理的支持方面，确定了有希望的定量结果。
结论：在向住院护理过渡期间，通过视频会议向痴呆症患者的家庭照顾者提供量身定制的咨询计划是可行且可接受的。该计划有可能改善对家庭照顾者的过渡支持。
背景：本研究在澳大利亚新西兰临床试验注册中心ACTRN12621001462875注册。
