关键词: dementia ethnography meaningful activities neurocognitive disorders qualitative research

来  源:   DOI:10.1177/10497323241239487

Abstract:
Supporting ageing in place, quality of life, and activity engagement are public health priorities for people with dementia. The importance of maintaining opportunities for meaningful activities has been widely acknowledged for those with dementia in long-term care, but little is known about what makes activities meaningful for, and how they are experienced by, people with different types of dementia in their own homes. This study used focussed ethnographic methods to explore the motivations and meanings of everyday activity engagement within the homes of 10 people with memory-led Alzheimer\'s disease and 10 people with posterior cortical atrophy. While participants\' interactions with their everyday environments were challenged by their diagnoses, they were all finding ways to continue meaning-making via various activities. The main findings are encapsulated in three themes: (1) The fun and the function of activities; (2) Reciprocities of care, and (3) The constitution and continuity of (a changing) self. Ongoing engagement with both fun and functional activities offered participants living with different dementias opportunities to connect with others, to offer care and support (as well as receive it), and to maintain a sense of self and identity. Implications are discussed regarding the development and delivery of tailored interventions and support to enable continued engagement in meaningful activities for people with different types of dementia living in the community.
摘要:
支持老化到位,生活质量,和活动参与是痴呆症患者的公共卫生优先事项。对于长期护理的痴呆症患者来说,保持有意义的活动机会的重要性已得到广泛认可,但是人们对活动的意义知之甚少,以及他们是如何经历的,患有不同类型痴呆症的人在自己的家中。这项研究使用了集中的人种学方法来探索10名记忆主导的阿尔茨海默病患者和10名患有后皮质萎缩的患者的家庭中日常活动参与的动机和意义。虽然参与者与日常环境的互动受到诊断的挑战,他们都在寻找通过各种活动继续创造意义的方法。主要发现包含在三个主题中:(1)活动的乐趣和功能;(2)护理互惠,(3)(不断变化的)自我的构成和连续性。持续参与有趣和功能性活动,为参与者提供了与不同痴呆症患者联系的机会,提供护理和支持(以及接受),保持自我和认同感。讨论了有关开发和提供量身定制的干预措施和支持的含义,以使社区中不同类型的痴呆症患者能够继续参与有意义的活动。
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