关键词: Congenital heart disease Diagnostic tests Follow-up

Mesh : Humans Heart Defects, Congenital / epidemiology diagnosis therapy Adult Practice Guidelines as Topic / standards Population Surveillance / methods Female Male Surveys and Questionnaires Practice Patterns, Physicians' / standards statistics & numerical data Cardiology / standards Follow-Up Studies

来  源:   DOI:10.1016/j.ijcard.2024.132022

Abstract:
OBJECTIVE: Congenital heart disease (CHD) is the most common birth defect with prevalence of 0.8%. Thanks to tremendous progress in medical and surgical practice, nowadays, >90% of children survive into adulthood. Recently European Society of Cardiology (ESC), American College of Cardiology (ACC)/ American Heart Association (AHA) issued guidelines which offer diagnostic and therapeutic recommendations for the different defect categories. However, the type of technical exams and their frequency of follow-up may vary largely between clinicians and centres. We aimed to present an overview of available diagnostic modalities and describe current surveillance practices by cardiologists taking care of adults with CHD (ACHD).
RESULTS: A questionnaire was used to assess the frequency cardiologists treating ACHD for at least one year administrated the most common diagnostic tests for ACHD. The most frequently employed diagnostic modalities were ECG and echocardiography for both mild and moderate/severe CHD. Sixty-seven percent of respondents reported that they routinely address psychosocial well-being.
CONCLUSIONS: Differences exist between reported current clinical practice and published guidelines. This is particularly true for the care of patients with mild lesions. In addition, some differences exist between ESC and American guidelines, with more frequent surveillance suggested by the Americans.
摘要:
目的:先天性心脏病(CHD)是最常见的出生缺陷,患病率为0.8%。由于医疗和外科实践的巨大进步,如今,>90%的儿童存活到成年。最近欧洲心脏病学会(ESC),美国心脏病学会(ACC)/美国心脏协会(AHA)发布了指南,为不同的缺陷类别提供诊断和治疗建议。然而,临床医生和中心的技术检查类型及其随访频率可能有很大差异。我们旨在概述可用的诊断方式,并描述心脏病专家照顾CHD(ACHD)成人的当前监测实践。
结果:使用问卷评估至少一年来治疗ACHD的心脏病专家进行ACHD最常见的诊断测试的频率。最常用的诊断方式是轻度和中度/复杂CHD的ECG和超声心动图。67%的受访者表示,他们经常关注社会心理健康。
结论:目前报道的临床实践与已发表的指南之间存在差异。对于轻度病变患者的护理尤其如此。此外,ESC和美国指南之间存在一些差异,美国人建议进行更频繁的监视。
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