Abstract：
Heart failure (HF) is a prevalent global disease, particularly impacting developed countries. With the world\'s aging population, HF\'s impact on the quantity and quality of life is expected to grow. This review aims to ascertain the frequency, characteristics, and properties of all patient-reported outcomes measures (PROMs) studied in HF patients. We searched Ovid/Medline and Web of Science for original articles about PROMs performed in adults with HF. Using pre-established quality criteria for measurement properties, an overall rating was assigned to evaluate and compare different instruments. The quality of evidence was assessed with the COSMIN risk of bias checklist. Of 4283 records identified, we reviewed 296 full-text documents and included 64 papers, involving 30,185 participants. Thirty different PROMs were identified, with 14 specifically designed for HF being the most commonly used. Minnesota Living with Heart Failure (MLHF) and Kansas City Cardiomyopathy Questionnaire (KCCQ) were evaluated 16 and 13 times, respectively, demonstrating good psychometric properties. The MacNew Heart Disease Health-Related Quality of Life Questionnaire, a common heart disease-specific instrument, exhibited negative performances across various psychometric measures. Evidence for generic instruments was scant and unremarkable and they proved to be less responsive in HF populations. MLHF and KCCQ emerged as the most commonly used and well-supported PROMs, with robust overall evidence. They are comprehensive and accurate instruments, particularly suitable for application in clinical practice and research. Future research should explore how computer-adapted instruments can enhance precision, reduce respondent burden, and improve communication between clinicians and patients, thereby promoting more efficient and patient-centered services.
摘要：
心力衰竭（HF）是一种普遍的全球性疾病，特别是对发达国家的影响。随着世界人口老龄化,HF对生活的数量和质量的影响预计会增长。这篇综述旨在确定频率，特点,以及在HF患者中研究的所有患者报告结局指标（PROM）的特性。我们搜索了Ovid/Medline和WebofScience，以获取有关成人HF患者进行PROM的原始文章。使用预先建立的测量特性质量标准，评估和比较不同仪器的总体评级.使用COSMIN偏见风险检查表评估证据质量。在确定的4283条记录中，我们审查了296篇全文文件，包括64篇论文，涉及30,185名参与者。确定了30种不同的PROM，14专门为HF是最常用的。明尼苏达州心力衰竭（MLHF）和堪萨斯城心肌病问卷（KCCQ）分别评估了16和13次，分别,表现出良好的心理测量特性。MacNew心脏病健康相关生活质量问卷，一种常见的心脏病专用仪器，在各种心理测量中表现出负面表现。通用仪器的证据很少且不明显，并且在HF人群中被证明反应较差。MLHF和KCCQ成为最常用和支持最良好的PROM，有强有力的总体证据。它们是全面准确的仪器，特别适合在临床实践和研究中应用。未来的研究应该探索计算机适应仪器如何提高精度，减轻受访者负担，改善临床医生和患者之间的沟通，从而促进更有效和以患者为中心的服务。
