PDF(Pubmed)
Abstract：
UNASSIGNED: This United Kingdom study aimed to explore people\'s experiences of living with, and self-managing parastomal bulging.
UNASSIGNED: Seventeen people were interviewed and 61 people completed an online survey.
UNASSIGNED: Parastomal bulging has a detrimental impact on quality of life including a negative impact on stoma function, daily activities, body image, physical intimacy, and socialising; access to specialist information and support for addressing the problem of bulging was inequitable; support garments were the most common self-management intervention; there was confusion about what exercise would be beneficial or how being active would help in terms of parastomal bulging self-management; peer support is no substitute for high quality specialist support.
UNASSIGNED: People need equitable access to information and support to self-manage and treat parastomal bulging. Research about other types of self-management interventions, for example, exercise is required so that people do not have to rely solely on support garments to self-manage parastomal bulging.
UNASSIGNED: Seventeen people were interviewed and 61 people completed an online survey.
UNASSIGNED: Parastomal bulging has a detrimental impact on quality of life including a negative impact on stoma function, daily activities, body image, physical intimacy, and socialising; access to specialist information and support for addressing the problem of bulging was inequitable; support garments were the most common self-management intervention; there was confusion about what exercise would be beneficial or how being active would help in terms of parastomal bulging self-management; peer support is no substitute for high quality specialist support.
UNASSIGNED: People need equitable access to information and support to self-manage and treat parastomal bulging. Research about other types of self-management interventions, for example, exercise is required so that people do not have to rely solely on support garments to self-manage parastomal bulging.
摘要：
■这项英国研究旨在探索人们的生活体验，和自我管理的准物种膨胀。
■采访了17人，完成了在线调查61人。
■造口旁隆起对生活质量有不利影响，包括对造口功能的负面影响，日常活动,身体形象，身体上的亲密关系，和社会化；获得专家信息和支持以解决膨胀问题是不公平的；支持服装是最常见的自我管理干预措施；在造模膨胀的自我管理方面，关于什么运动是有益的或如何积极的，存在困惑；同伴支持不能替代高质量的专家支持。
■人们需要公平地获取信息和支持，以自我管理和治疗造模前膨胀。关于其他类型的自我管理干预措施的研究，例如,需要锻炼，这样人们就不必仅仅依靠支撑服装来自我管理造物的膨胀。
■采访了17人，完成了在线调查61人。
■造口旁隆起对生活质量有不利影响，包括对造口功能的负面影响，日常活动,身体形象，身体上的亲密关系，和社会化；获得专家信息和支持以解决膨胀问题是不公平的；支持服装是最常见的自我管理干预措施；在造模膨胀的自我管理方面，关于什么运动是有益的或如何积极的，存在困惑；同伴支持不能替代高质量的专家支持。
■人们需要公平地获取信息和支持，以自我管理和治疗造模前膨胀。关于其他类型的自我管理干预措施的研究，例如,需要锻炼，这样人们就不必仅仅依靠支撑服装来自我管理造物的膨胀。
