PDF(Pubmed)
Abstract：
UNASSIGNED: The present study was conducted to generate data on awareness and incidence of sickle cell disease (SCD) and also to adduce the widespread myths peddled about SCD.
UNASSIGNED: Students studying in the Department of Nursing were recruited. A pretested, self-administered sickle cell assessment questionnaire was distributed electronically through WhatsApp group to collect necessary data. Participants were screened for malaria by thin blood smear analyses, and their hemoglobin (Hb) contents (g/dL) were determined by Sahli\'s haemoglobinometer. Statistical analyses were done using Origin (version 8.1, USA). A reliability study was performed for the validity of questionnaire data.
UNASSIGNED: Study participants had significantly high awareness regarding SCDs (89.9%, P < 0.001). Most participants (96.3%) were aware about government policy regarding premarital screening for genetic disorders and replied that the government has strict health policies backed by equally robust laboratory diagnostics. Moreover, none of the participants had SCDs, although their parents had a consanguineous marriage. Thin blood smear analyses of participants did not reveal any cases of Plasmodium falciparum. However, significant percentages (33.1%) were found to be anemic, probably due to their dietary habits and lifestyles, as has been reflected by questionnaire analyses. Furthermore, a very less number of students had knowledge about genetic variations that might occur in malaria-endemic regions after long exposure to offer protection from malaria. Knowledge about management practices was also lacking among study participants (29%).
UNASSIGNED: This research points to the necessity that the nursing study plan should focus on providing specific training on management skills and preventive measures for SCDs, which is of paramount importance.
UNASSIGNED: Students studying in the Department of Nursing were recruited. A pretested, self-administered sickle cell assessment questionnaire was distributed electronically through WhatsApp group to collect necessary data. Participants were screened for malaria by thin blood smear analyses, and their hemoglobin (Hb) contents (g/dL) were determined by Sahli\'s haemoglobinometer. Statistical analyses were done using Origin (version 8.1, USA). A reliability study was performed for the validity of questionnaire data.
UNASSIGNED: Study participants had significantly high awareness regarding SCDs (89.9%, P < 0.001). Most participants (96.3%) were aware about government policy regarding premarital screening for genetic disorders and replied that the government has strict health policies backed by equally robust laboratory diagnostics. Moreover, none of the participants had SCDs, although their parents had a consanguineous marriage. Thin blood smear analyses of participants did not reveal any cases of Plasmodium falciparum. However, significant percentages (33.1%) were found to be anemic, probably due to their dietary habits and lifestyles, as has been reflected by questionnaire analyses. Furthermore, a very less number of students had knowledge about genetic variations that might occur in malaria-endemic regions after long exposure to offer protection from malaria. Knowledge about management practices was also lacking among study participants (29%).
UNASSIGNED: This research points to the necessity that the nursing study plan should focus on providing specific training on management skills and preventive measures for SCDs, which is of paramount importance.
摘要：
■进行本研究是为了生成有关镰状细胞病（SCD）的认识和发病率的数据，并引用有关SCD的广泛神话。
■招募在护理系学习的学生。一个预先测试，自我管理的镰状细胞评估问卷通过WhatsApp小组以电子方式分发,以收集必要的数据.参与者通过薄血涂片分析进行疟疾筛查，血红蛋白（Hb）含量（g/dL）用Sahli血红蛋白计测定。使用Origin(8.1版,美国)进行统计分析。对问卷数据的有效性进行了信度研究。
■研究参与者对SCD的认知度明显较高（89.9%，P<0.001)。大多数参与者（96.3％）了解政府关于婚前筛查遗传性疾病的政策，并回答说政府有严格的卫生政策，并有同样强大的实验室诊断支持。此外，参与者都没有SCD，尽管他们的父母有近亲婚姻.参与者的薄血涂片分析未发现任何恶性疟原虫病例。然而,发现显着百分比（33.1％）贫血，可能是由于他们的饮食习惯和生活方式，正如问卷分析所反映的那样。此外，很少有学生了解疟疾流行地区在长期暴露后可能发生的遗传变异，以提供疟疾保护。研究参与者也缺乏有关管理实践的知识（29％）。
■这项研究指出，护理研究计划应侧重于提供有关SCD的管理技能和预防措施的特定培训的必要性，这是至关重要的。
■招募在护理系学习的学生。一个预先测试，自我管理的镰状细胞评估问卷通过WhatsApp小组以电子方式分发,以收集必要的数据.参与者通过薄血涂片分析进行疟疾筛查，血红蛋白（Hb）含量（g/dL）用Sahli血红蛋白计测定。使用Origin(8.1版,美国)进行统计分析。对问卷数据的有效性进行了信度研究。
■研究参与者对SCD的认知度明显较高（89.9%，P<0.001)。大多数参与者（96.3％）了解政府关于婚前筛查遗传性疾病的政策，并回答说政府有严格的卫生政策，并有同样强大的实验室诊断支持。此外，参与者都没有SCD，尽管他们的父母有近亲婚姻.参与者的薄血涂片分析未发现任何恶性疟原虫病例。然而,发现显着百分比（33.1％）贫血，可能是由于他们的饮食习惯和生活方式，正如问卷分析所反映的那样。此外，很少有学生了解疟疾流行地区在长期暴露后可能发生的遗传变异，以提供疟疾保护。研究参与者也缺乏有关管理实践的知识（29％）。
■这项研究指出，护理研究计划应侧重于提供有关SCD的管理技能和预防措施的特定培训的必要性，这是至关重要的。
