关键词: Affect Bladder cancer Family caregivers Radical cystectomy

Mesh : Humans Caregivers China Home Care Services Qualitative Research East Asian People

来  源:   DOI:10.1007/s00520-024-08470-x

Abstract:
BACKGROUND: Family caregivers, also known as informal caregivers, are critical for the home care of patients with urostomy. The present study aimed to investigate the benefits of family caregivers in China while taking care of patients with urostomy from a positive perspective.
METHODS: A qualitative research design was adopted, with a thematic analysis. The qualitative research software NVivo was used for data analysis. Twenty-two family caregivers of urostomy patients participated in an in-depth interview for 60-90 min. A qualitative analysis was performed using a thematic approach in accordance with the six-stage thematic analysis process reported by Braun and Clarke (2006).
RESULTS: The following four benefits were identified: mastering knowledge and skills, promoting self-growth, establishing close family ties, and changing the way of life. Among these four themes, 11 sub-themes were constructed by coders.
CONCLUSIONS: This study provides new insights into intervention measures for family caregivers of patients with urostomy, which could play an important role in developing the overall model of family-centered nursing.
摘要:
背景:家庭照顾者,也被称为非正式护理人员,对于尿路造口患者的家庭护理至关重要。本研究旨在从积极的角度调查中国家庭照顾者在照顾尿路造口患者时的益处。
方法:采用定性研究设计,进行主题分析。采用定性研究软件NVivo进行数据分析。22名尿路造口患者的家庭护理人员参加了60-90分钟的深入访谈。根据Braun和Clarke(2006)报告的六阶段专题分析过程,采用专题方法进行了定性分析。
结果:确定了以下四个好处:掌握知识和技能,促进自我成长,建立紧密的家庭关系,改变生活方式.在这四个主题中,编码人员构建了11个子主题。
结论:这项研究为尿路造口患者的家庭照顾者提供了新的干预措施,这对发展以家庭为中心的整体护理模式具有重要作用。
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