PDF(Pubmed)
Abstract：
Creutzfeldt-Jacob disease (CJD) is a rare neurodegenerative disorder that typically progresses rapidly and unrelentingly. Providing comfort and support for patients with CJD presents significant challenges for clinicians and caregivers. In comparison to the more typical disease progression experienced in dementias, the trajectory of CJD differs significantly. This case report delves into these differences and emphasizes the need for the development of guidelines for healthcare professionals and families who care for individuals with CJD. Such guidelines would help facilitate better care and support for patients and their families throughout the course of this devastating illness.
摘要：
Creutzfeldt-Jacob病（CJD）是一种罕见的神经退行性疾病，通常进展迅速和无情。为CJD患者提供舒适和支持对临床医生和护理人员提出了重大挑战。与痴呆症中经历的更典型的疾病进展相比，CJD的轨迹差异显著。本病例报告深入研究了这些差异，并强调需要为照顾CJD患者的医疗保健专业人员和家庭制定指南。这样的指导方针将有助于在这种毁灭性疾病的整个过程中为患者及其家人提供更好的护理和支持。
