PDF(Pubmed)
Abstract：
OBJECTIVE: To describe cancer survivors\' and care partners\' perceived stress and social support during the COVID-19 pandemic and assess the feasibility of audio diaries for assessing role-related needs and resources.
METHODS: Participants (N = 51; n = 28 survivors, n = 23 care partners) recorded three monthly audio diaries reporting stress and support experiences. Diaries were transcribed and content-analyzed using a hybrid approach. Stress-related content was inductively coded, and social support content was deductively coded by type (instrumental, information, emotional, companionship, appraisal; κ = 0.75) then inductively coded. Descriptive statistics summarized sociodemographic data and compared coding frequencies by role. We developed narrative summaries of stress and support categories and selected quotes for contextual detail.
RESULTS: Cancer-related stressors were most prevalent (28.8%), followed by work (26.8%), family (23.1%), social isolation (13.4%), and finances (8.0%). While no significant difference in reporting frequency was observed between roles, cancer-related stress was more prevalent for survivors while work-related stress was mentioned more by care partners. Emotional support was the most prevalent support type (32.1%), followed by companionship (25.3%), appraisal (17.9%), instrumental (16.67%), and informational support (8%). Survivors reported more appraisal support than care partners (χ2 = 6.48, df = 1, P = .011) and more support for self-care, while care partners expressed more other-oriented concerns and focused more on managing responsibilities and interactions outside the household.
CONCLUSIONS: The pandemic complicated and intensified role-based stressors already present in the survivorship context. Our findings highlight the importance of informal social support networks, particularly when access to formal services is limited, and suggest that audio diaries can be an effective tool for assessing support needs and resources.
CONCLUSIONS: Nurses and healthcare providers should tailor social support assessments to address the distinct support needs and individual resources of cancer survivors and their care partners. This is especially critical in contexts that limit access to care and formal services.
METHODS: Participants (N = 51; n = 28 survivors, n = 23 care partners) recorded three monthly audio diaries reporting stress and support experiences. Diaries were transcribed and content-analyzed using a hybrid approach. Stress-related content was inductively coded, and social support content was deductively coded by type (instrumental, information, emotional, companionship, appraisal; κ = 0.75) then inductively coded. Descriptive statistics summarized sociodemographic data and compared coding frequencies by role. We developed narrative summaries of stress and support categories and selected quotes for contextual detail.
RESULTS: Cancer-related stressors were most prevalent (28.8%), followed by work (26.8%), family (23.1%), social isolation (13.4%), and finances (8.0%). While no significant difference in reporting frequency was observed between roles, cancer-related stress was more prevalent for survivors while work-related stress was mentioned more by care partners. Emotional support was the most prevalent support type (32.1%), followed by companionship (25.3%), appraisal (17.9%), instrumental (16.67%), and informational support (8%). Survivors reported more appraisal support than care partners (χ2 = 6.48, df = 1, P = .011) and more support for self-care, while care partners expressed more other-oriented concerns and focused more on managing responsibilities and interactions outside the household.
CONCLUSIONS: The pandemic complicated and intensified role-based stressors already present in the survivorship context. Our findings highlight the importance of informal social support networks, particularly when access to formal services is limited, and suggest that audio diaries can be an effective tool for assessing support needs and resources.
CONCLUSIONS: Nurses and healthcare providers should tailor social support assessments to address the distinct support needs and individual resources of cancer survivors and their care partners. This is especially critical in contexts that limit access to care and formal services.
摘要：
目的：描述COVID-19大流行期间癌症幸存者和护理伙伴的感知压力和社会支持，并评估音频日记评估角色相关需求和资源的可行性。
方法：参与者（N=51；n=28名幸存者，n=23名护理伙伴）记录了三个月的音频日记，报告了压力和支持经验。使用混合方法对日记进行转录和内容分析。与压力相关的内容是感应编码的，社会支持内容按类型演绎编码(工具性，信息,情感,陪伴,评估；κ=0.75)然后感应编码。描述性统计数据总结了社会人口统计学数据，并按角色比较了编码频率。我们开发了压力和支持类别的叙述性摘要，并选择了上下文细节的报价。
结果：与癌症相关的压力源最普遍（28.8%），其次是工作(26.8%)，家庭(23.1%),社会隔离（13.4%），和财务（8.0%）。虽然不同角色之间的报告频率没有显着差异，癌症相关的应激在幸存者中更为普遍,而护理伙伴更多地提及与工作相关的应激.情感支持是最普遍的支持类型(32.1%)，其次是陪伴(25.3%)，评估（17.9%），仪器(16.67%)，和信息支持(8%)。幸存者报告比护理伙伴更多的评估支持（χ2=6.48，df=1，P=0.011）和更多的自我护理支持，而护理伙伴表达了更多面向其他方面的担忧，并更侧重于管理责任和家庭外的互动。
结论：大流行在生存背景下已经存在复杂且加剧的基于角色的压力源。我们的发现强调了非正式社会支持网络的重要性，特别是当获得正式服务受到限制时，并建议音频日记可以成为评估支持需求和资源的有效工具。
结论：护士和医疗保健提供者应定制社会支持评估，以满足癌症幸存者及其护理伙伴的不同支持需求和个人资源。在限制获得护理和正式服务的情况下，这一点尤其重要。
方法：参与者（N=51；n=28名幸存者，n=23名护理伙伴）记录了三个月的音频日记，报告了压力和支持经验。使用混合方法对日记进行转录和内容分析。与压力相关的内容是感应编码的，社会支持内容按类型演绎编码(工具性，信息,情感,陪伴,评估；κ=0.75)然后感应编码。描述性统计数据总结了社会人口统计学数据，并按角色比较了编码频率。我们开发了压力和支持类别的叙述性摘要，并选择了上下文细节的报价。
结果：与癌症相关的压力源最普遍（28.8%），其次是工作(26.8%)，家庭(23.1%),社会隔离（13.4%），和财务（8.0%）。虽然不同角色之间的报告频率没有显着差异，癌症相关的应激在幸存者中更为普遍,而护理伙伴更多地提及与工作相关的应激.情感支持是最普遍的支持类型(32.1%)，其次是陪伴(25.3%)，评估（17.9%），仪器(16.67%)，和信息支持(8%)。幸存者报告比护理伙伴更多的评估支持（χ2=6.48，df=1，P=0.011）和更多的自我护理支持，而护理伙伴表达了更多面向其他方面的担忧，并更侧重于管理责任和家庭外的互动。
结论：大流行在生存背景下已经存在复杂且加剧的基于角色的压力源。我们的发现强调了非正式社会支持网络的重要性，特别是当获得正式服务受到限制时，并建议音频日记可以成为评估支持需求和资源的有效工具。
结论：护士和医疗保健提供者应定制社会支持评估，以满足癌症幸存者及其护理伙伴的不同支持需求和个人资源。在限制获得护理和正式服务的情况下，这一点尤其重要。
