PDF(Pubmed)
Abstract：
BACKGROUND: Experiential knowledge can aid in designing research by highlighting what an idea looks like from a patient and carer perspective. Experiential knowledge can be emotional, and this can create challenges at formal research meetings.
OBJECTIVE: The aim of this study was to consider the role of emotions in public involvement.
METHODS: This is a conceptual review informed by relevant literature and reflection within the author team. A structured Scopus search was conducted in November 2021 and December 2022, identifying 18 articles that presented findings from patient and public involvement (PPI) research related to \'emotion\'. We complemented the search with theory-generating articles related to the role of emotion and emotional labour in human life.
RESULTS: Study findings from the structured search were tabulated to identify recurring themes; these were as follows: emotional connections to the research topic can cause stressful as well as cathartic experiences of PPI, \'emotional work\' is part of PPI when people are contributing with their experiential knowledge and the emotional aspect of \'lived experience\' needs to be recognised in how PPI is planned and facilitated. These points were considered in relation to theoretical works and experiences within the author team.
CONCLUSIONS: \'Emotion work\' is often required of public collaborators when they contribute to research. They are asked to contribute to research alongside researchers, with knowledge that often contains emotions or feelings. This can be both upsetting and cathartic, and the environment of the research study can make the experience worse or better.
CONCLUSIONS: The emotional component of experiential knowledge can be challenging to those invited to share this knowledge. It is imperative that researchers, research institutions and health and care professionals adjust research meeting spaces to show an awareness of the emotional labour that is involved in PPI.
UNASSIGNED: This review was initiated after a meeting between carers and family members of residents in care homes and researchers. The review is co-written by a group of three researchers and three carers and family members. Regular online meetings were held during the draft stages to incorporate people\'s views and ideas. Data extracted from the review were presented to the group of public collaborators in a variety of formats (e.g., posters, slideshows, text and verbally) to facilitate shared sense-making and synthesis of the literature.
OBJECTIVE: The aim of this study was to consider the role of emotions in public involvement.
METHODS: This is a conceptual review informed by relevant literature and reflection within the author team. A structured Scopus search was conducted in November 2021 and December 2022, identifying 18 articles that presented findings from patient and public involvement (PPI) research related to \'emotion\'. We complemented the search with theory-generating articles related to the role of emotion and emotional labour in human life.
RESULTS: Study findings from the structured search were tabulated to identify recurring themes; these were as follows: emotional connections to the research topic can cause stressful as well as cathartic experiences of PPI, \'emotional work\' is part of PPI when people are contributing with their experiential knowledge and the emotional aspect of \'lived experience\' needs to be recognised in how PPI is planned and facilitated. These points were considered in relation to theoretical works and experiences within the author team.
CONCLUSIONS: \'Emotion work\' is often required of public collaborators when they contribute to research. They are asked to contribute to research alongside researchers, with knowledge that often contains emotions or feelings. This can be both upsetting and cathartic, and the environment of the research study can make the experience worse or better.
CONCLUSIONS: The emotional component of experiential knowledge can be challenging to those invited to share this knowledge. It is imperative that researchers, research institutions and health and care professionals adjust research meeting spaces to show an awareness of the emotional labour that is involved in PPI.
UNASSIGNED: This review was initiated after a meeting between carers and family members of residents in care homes and researchers. The review is co-written by a group of three researchers and three carers and family members. Regular online meetings were held during the draft stages to incorporate people\'s views and ideas. Data extracted from the review were presented to the group of public collaborators in a variety of formats (e.g., posters, slideshows, text and verbally) to facilitate shared sense-making and synthesis of the literature.
摘要：
背景：经验知识可以通过突出从患者和护理人员的角度来看一个想法的样子来帮助设计研究。经验知识可以是情绪化的，这可能会在正式的研究会议上带来挑战。
目的：本研究的目的是考虑情绪在公众参与中的作用。
方法：这是一个概念性综述，由相关文献和作者团队内部的反思提供。2021年11月和2022年12月进行了结构化的Scopus搜索，确定了18篇文章，这些文章介绍了与“情绪”相关的患者和公众参与（PPI）研究结果。我们通过与情感和情感劳动在人类生活中的作用有关的理论生成文章来补充搜索。
结果：将结构化搜索的研究结果制成表格，以确定重复出现的主题；这些内容如下：与研究主题的情感联系可能导致PPI的压力和宣泄体验，当人们用他们的经验知识做出贡献时，“情感工作”是PPI的一部分，“生活经验”的情感方面需要在PPI的计划和促进方式中得到认可。这些观点与作者团队的理论工作和经验有关。
结论：公共合作者为研究做出贡献时，通常需要“情感工作”。他们被要求与研究人员一起为研究做出贡献，知识往往包含情感或感情。这可能既令人沮丧又宣泄，而研究性学习的环境会使体验变得更糟或更好。
结论：经验知识的情感成分对被邀请分享这些知识的人来说可能是具有挑战性的。当务之急是研究人员，研究机构和医疗保健专业人员调整研究会议空间，以显示对PPI所涉及的情感劳动的认识。
■这项审查是在护理院的照顾者和居民的家庭成员与研究人员之间的会议之后发起的。该评论由三名研究人员和三名照顾者和家庭成员组成的小组共同撰写。在起草阶段定期举行在线会议，以吸收人们的观点和想法。从审查中提取的数据以各种格式提交给公共合作者组(例如，海报,幻灯片,文本和口头)，以促进文学的共同意义和综合。
目的：本研究的目的是考虑情绪在公众参与中的作用。
方法：这是一个概念性综述，由相关文献和作者团队内部的反思提供。2021年11月和2022年12月进行了结构化的Scopus搜索，确定了18篇文章，这些文章介绍了与“情绪”相关的患者和公众参与（PPI）研究结果。我们通过与情感和情感劳动在人类生活中的作用有关的理论生成文章来补充搜索。
结果：将结构化搜索的研究结果制成表格，以确定重复出现的主题；这些内容如下：与研究主题的情感联系可能导致PPI的压力和宣泄体验，当人们用他们的经验知识做出贡献时，“情感工作”是PPI的一部分，“生活经验”的情感方面需要在PPI的计划和促进方式中得到认可。这些观点与作者团队的理论工作和经验有关。
结论：公共合作者为研究做出贡献时，通常需要“情感工作”。他们被要求与研究人员一起为研究做出贡献，知识往往包含情感或感情。这可能既令人沮丧又宣泄，而研究性学习的环境会使体验变得更糟或更好。
结论：经验知识的情感成分对被邀请分享这些知识的人来说可能是具有挑战性的。当务之急是研究人员，研究机构和医疗保健专业人员调整研究会议空间，以显示对PPI所涉及的情感劳动的认识。
■这项审查是在护理院的照顾者和居民的家庭成员与研究人员之间的会议之后发起的。该评论由三名研究人员和三名照顾者和家庭成员组成的小组共同撰写。在起草阶段定期举行在线会议，以吸收人们的观点和想法。从审查中提取的数据以各种格式提交给公共合作者组(例如，海报,幻灯片,文本和口头)，以促进文学的共同意义和综合。
