关键词: Breast cancer Cancer screening Hard-to-reach populations Health inequities Immigrants Refugees

Mesh : Humans Female Literacy Trust Employment

来  源:   DOI:10.1186/s12939-024-02145-z   PDF(Pubmed)

Abstract:
OBJECTIVE: Addressing obstacles such as logistical complexities, social stigma, and the impact of historical traumas is essential for the successful inclusion of underrepresented groups in health research.
METHODS: This article reviews engagement and interview techniques used to ethically engage recently settled Afghan refugees in Oklahoma and rural Mexican-born women in Illinois in research. The paper concludes with a reflective discussion on the challenges and lessons learned.
RESULTS: Creative strategies to engage hard-to-reach populations in research included considering the participants\' socioeconomic and cultural contexts in their interactions and developing community partnerships to establish trust and obtain reliable data. Other engagement strategies were communicating in the participants\' preferred language, providing assistance with reading and responding to study questions for those with low literacy, employing research staff from the population of interest, and recruiting in specific locations where the populations of interest live.
CONCLUSIONS: Community engagement is essential at all stages of research for building trust in hard-to-reach populations, achieving inclusivity in health research, and ensuring that interventions are culturally sensitive and effective.
摘要:
目标:解决后勤复杂性等障碍,社会耻辱,历史创伤的影响对于成功将代表性不足的群体纳入健康研究至关重要。
方法:本文回顾了参与和采访技巧,这些技巧在道德上参与了最近在俄克拉荷马州定居的阿富汗难民和伊利诺伊州墨西哥出生的农村妇女的研究。本文最后对挑战和经验教训进行了反思讨论。
结果:让难以接触到的人群参与研究的创造性策略包括在互动中考虑参与者的社会经济和文化背景,并发展社区伙伴关系以建立信任和获得可靠的数据。其他参与策略是用参与者的首选语言进行交流,为识字率低的人提供阅读和回答学习问题的帮助,从感兴趣的人群中雇用研究人员,并在感兴趣的人群居住的特定地点招募。
结论:在研究的各个阶段,社区参与对于在难以接触的人群中建立信任至关重要,在健康研究中实现包容性,并确保干预措施具有文化敏感性和有效性。
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