PDF(Pubmed)
Abstract：
UNASSIGNED: Initiated in June 2019, this collaborative effort involved 15 public and private sector hospitals in Pakistan. The primary objective was to enhance the capacity for pediatric neuro-oncology (PNO) care, supported by a My Child Matters/Foundation S grant.
UNASSIGNED: We aimed to establish and operate Multidisciplinary Tumor Boards (MTBs) on a national scale, covering 76% of the population (185.7 million people). In response to the COVID-19 pandemic, MTBs transitioned to videoconferencing. Fifteen hospitals with essential infrastructure participated, holding monthly sessions addressing diagnostic and treatment challenges. Patient cases were anonymized for confidentiality. Educational initiatives, originally planned as in-person events, shifted to a virtual format, enabling continued implementation and collaboration despite pandemic constraints.
UNASSIGNED: A total of 124 meetings were conducted, addressing 545 cases. To augment knowledge, awareness, and expertise, over 40 longitudinal lectures were organized for healthcare professionals engaged in PNO care. Additionally, two symposia with international collaborators and keynote speakers were also held to raise national awareness. The project achieved significant milestones, including the development of standardized national treatment protocols for low-grade glioma, medulloblastoma, and high-grade glioma. Further protocols are currently under development. Notably, Pakistan\'s first pediatric neuro-oncology fellowship program was launched, producing two graduates and increasing the number of trained pediatric neuro-oncologists in the country to three.
UNASSIGNED: The initiative exemplifies the potential for capacity building in PNO within low-middle income countries. Success is attributed to intra-national twinning programs, emphasizing collaborative efforts. Efforts are underway to establish a national case registry for PNO, ensuring a comprehensive and organized approach to monitoring and managing cases. This collaborative initiative, supported by the My Child Matters/Foundation S grant, showcases the success of capacity building in pediatric neuro-oncology in low-middle income countries. The establishment of treatment protocols, fellowship programs, and regional tumor boards highlights the potential for sustainable improvements in PNO care.
UNASSIGNED: We aimed to establish and operate Multidisciplinary Tumor Boards (MTBs) on a national scale, covering 76% of the population (185.7 million people). In response to the COVID-19 pandemic, MTBs transitioned to videoconferencing. Fifteen hospitals with essential infrastructure participated, holding monthly sessions addressing diagnostic and treatment challenges. Patient cases were anonymized for confidentiality. Educational initiatives, originally planned as in-person events, shifted to a virtual format, enabling continued implementation and collaboration despite pandemic constraints.
UNASSIGNED: A total of 124 meetings were conducted, addressing 545 cases. To augment knowledge, awareness, and expertise, over 40 longitudinal lectures were organized for healthcare professionals engaged in PNO care. Additionally, two symposia with international collaborators and keynote speakers were also held to raise national awareness. The project achieved significant milestones, including the development of standardized national treatment protocols for low-grade glioma, medulloblastoma, and high-grade glioma. Further protocols are currently under development. Notably, Pakistan\'s first pediatric neuro-oncology fellowship program was launched, producing two graduates and increasing the number of trained pediatric neuro-oncologists in the country to three.
UNASSIGNED: The initiative exemplifies the potential for capacity building in PNO within low-middle income countries. Success is attributed to intra-national twinning programs, emphasizing collaborative efforts. Efforts are underway to establish a national case registry for PNO, ensuring a comprehensive and organized approach to monitoring and managing cases. This collaborative initiative, supported by the My Child Matters/Foundation S grant, showcases the success of capacity building in pediatric neuro-oncology in low-middle income countries. The establishment of treatment protocols, fellowship programs, and regional tumor boards highlights the potential for sustainable improvements in PNO care.
摘要：
■始于2019年6月，这项合作努力涉及巴基斯坦的15家公立和私立医院。主要目标是提高儿科神经肿瘤（PNO）护理的能力，由我的孩子事务/基金会资助。
■我们的目标是在全国范围内建立和运营多学科肿瘤委员会（MTB），覆盖76%的人口（1.857亿人）。为了应对COVID-19大流行，MTB过渡到视频会议。15家拥有基本基础设施的医院参加了会议，每月举行会议，解决诊断和治疗的挑战。为了保密，患者病例被匿名化。教育倡议，最初计划作为亲自活动，转换为虚拟格式，尽管存在大流行限制，但仍能继续实施和合作。
■共举行了124次会议，处理545起案件。为了增加知识，意识,和专业知识，为从事PNO护理的医疗保健专业人员组织了40多次纵向讲座。此外,还与国际合作者和主旨发言人举行了两次专题讨论会，以提高国家意识。该项目取得了重要的里程碑，包括制定针对低度神经胶质瘤的标准化国家治疗方案，髓母细胞瘤,和高级别神经胶质瘤.目前正在制定进一步的协议。值得注意的是,巴基斯坦启动了第一个儿科神经肿瘤学研究金计划，培养两名毕业生，并将该国训练有素的儿科神经肿瘤学家人数增加到三名。
■该倡议体现了中低收入国家在PNO方面能力建设的潜力。成功归功于国内的结对计划，强调协作努力。正在努力为PNO建立国家案件登记册，确保采取全面和有组织的方法来监测和管理案件。这一合作倡议,由我的孩子事务/基金会S资助，展示了中低收入国家儿科神经肿瘤学能力建设的成功。治疗方案的建立，奖学金项目,区域肿瘤委员会强调了PNO护理可持续改善的潜力。
■我们的目标是在全国范围内建立和运营多学科肿瘤委员会（MTB），覆盖76%的人口（1.857亿人）。为了应对COVID-19大流行，MTB过渡到视频会议。15家拥有基本基础设施的医院参加了会议，每月举行会议，解决诊断和治疗的挑战。为了保密，患者病例被匿名化。教育倡议，最初计划作为亲自活动，转换为虚拟格式，尽管存在大流行限制，但仍能继续实施和合作。
■共举行了124次会议，处理545起案件。为了增加知识，意识,和专业知识，为从事PNO护理的医疗保健专业人员组织了40多次纵向讲座。此外,还与国际合作者和主旨发言人举行了两次专题讨论会，以提高国家意识。该项目取得了重要的里程碑，包括制定针对低度神经胶质瘤的标准化国家治疗方案，髓母细胞瘤,和高级别神经胶质瘤.目前正在制定进一步的协议。值得注意的是,巴基斯坦启动了第一个儿科神经肿瘤学研究金计划，培养两名毕业生，并将该国训练有素的儿科神经肿瘤学家人数增加到三名。
■该倡议体现了中低收入国家在PNO方面能力建设的潜力。成功归功于国内的结对计划，强调协作努力。正在努力为PNO建立国家案件登记册，确保采取全面和有组织的方法来监测和管理案件。这一合作倡议,由我的孩子事务/基金会S资助，展示了中低收入国家儿科神经肿瘤学能力建设的成功。治疗方案的建立，奖学金项目,区域肿瘤委员会强调了PNO护理可持续改善的潜力。
