PDF(Pubmed)
Abstract：
Evaluating the experiences of persons with spinal cord injury (PwSCI) regarding their transitions in care and changes in health, function, and quality of life is complex, fragmented, and involves multiple tools and measures. A staged protocol was implemented with PwSCI and relevant expert stakeholders initially exploring and selecting existing measures or tools through a modified Delphi process, followed by choosing one of two options. The options were to either support the use of the 10 selected tools from the Delphi method or to co-develop one unique condensed tool with relevant measures to evaluate all four domains. The stakeholders chose to co-develop one tool to be used by persons with SCI to monitor their transition experiences across settings and care providers. This includes any issues with care or support they needed to address at the time of discharge from acute care or rehabilitation and in the community at 3, 6, and 12 months or longer post-discharge. Once developed, the tool was made available online for the final stage of the protocol, which proposes that the tool be reliability tested prior to its launch, followed by validation testing by PwSCI.
摘要：
评估脊髓损伤（PwSCI）患者在护理过渡和健康变化方面的经验，函数,生活质量很复杂，支离破碎，涉及多种工具和措施。与PwSCI和相关专家利益相关者一起实施了分阶段协议，最初通过修改后的Delphi流程探索和选择现有措施或工具，然后选择两个选项之一。选项是支持使用Delphi方法中的10个选定工具，或者共同开发一个独特的浓缩工具，并采用相关措施来评估所有四个领域。利益攸关方选择共同开发一种工具，供SCI患者使用，以监测他们在环境和护理提供者之间的过渡经验。这包括在急性护理或康复出院时以及出院后3、6和12个月或更长时间在社区中需要解决的任何护理或支持问题。一旦开发,该工具已在协议的最后阶段在线提供，建议在推出之前对该工具进行可靠性测试，其次是PwSCI的验证测试。
