Mesh : Adolescent Female Humans Ehlers-Danlos Syndrome / complications diagnosis therapy Joint Instability / complications diagnosis therapy congenital Menorrhagia / diagnosis etiology therapy Quality of Life

来  源:   DOI:10.3928/19382359-20240109-05

Abstract:
Heavy menstrual bleeding has a high prevalence and is well documented in adult patients with hypermobile-type Ehlers-Danlos syndrome, but there is limited research surrounding work-up and treatment for the adolescent population. Excessive menstrual blood loss can significantly interfere with emotional and physical quality of life. A provider should acquire a comprehensive medical and menstrual history and focused physical examination, as well as baseline laboratory studies, to determine the presence of anemia or underlying bleeding disorder. Use of a pictorial blood assessment chart may be considered to help quantify the amount of bleeding. Treatment to reduce heavy menstrual flow and referral to specialty care should be initiated swiftly to improve quality of life for this population. [Pediatr Ann. 2024;53(3):e104-e108.].
摘要:
大量月经出血的患病率很高,并且在患有高流动性型Ehlers-Danlos综合征的成年患者中有很好的记录。但是围绕青少年人群的工作和治疗的研究有限。月经失血过多会显著干扰情绪和身体生活质量。提供者应获得全面的医疗和月经史以及重点体检,以及基线实验室研究,以确定是否存在贫血或潜在的出血性疾病。可以考虑使用图形血液评估图表来帮助量化出血量。应迅速开始减少月经量的治疗并转诊至专科护理,以改善该人群的生活质量。[佩迪亚特·安。2024;53(3):e104-e108。].
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