Abstract：
BACKGROUND: Generally, mothers provide the majority of caring for children who have Down syndrome. They pose challenges not only with regard to the acceptability of the child situation but also with regard to the provision of care for children with DS.
OBJECTIVE: To explore the experiences of mothers parenting children with DS in Indonesia, to give a better understanding of their needs, which is necessary for the delivery of treatment.
METHODS: A descriptive qualitative research with content analysis was used. Study participants (15 mothers) were purposively sampled from attendees of a State Special School for students with disabilities. Data was collected via semi-structure interviews and were audio recorded. Participant\'s statements underwent content analysis, and the principle of trustworthiness was subsequently applied.
RESULTS: Five main themes describing participants\' experiences were identified: (1) parenting experiences - the impacts, (2) special needs, (3) parenting barriers, (4) parenting facilitators, and (5) mothers\' expectations.
CONCLUSIONS: The study findings showed that the mothers viewed their situation in both positive and negative ways. Despite the limited sample size in this exploratory study, the results offer new insights into raising a child with DS in a particular cultural setting.
CONCLUSIONS: This study offers important information to families and healthcare providers to improve awareness of the disorder and its appropriate management methods. It is important that an exploration of the experiences of mothers will provide healthcare professionals and families with an understanding of the situation. This understanding is essential for the effective management and delivery of treatment.
OBJECTIVE: To explore the experiences of mothers parenting children with DS in Indonesia, to give a better understanding of their needs, which is necessary for the delivery of treatment.
METHODS: A descriptive qualitative research with content analysis was used. Study participants (15 mothers) were purposively sampled from attendees of a State Special School for students with disabilities. Data was collected via semi-structure interviews and were audio recorded. Participant\'s statements underwent content analysis, and the principle of trustworthiness was subsequently applied.
RESULTS: Five main themes describing participants\' experiences were identified: (1) parenting experiences - the impacts, (2) special needs, (3) parenting barriers, (4) parenting facilitators, and (5) mothers\' expectations.
CONCLUSIONS: The study findings showed that the mothers viewed their situation in both positive and negative ways. Despite the limited sample size in this exploratory study, the results offer new insights into raising a child with DS in a particular cultural setting.
CONCLUSIONS: This study offers important information to families and healthcare providers to improve awareness of the disorder and its appropriate management methods. It is important that an exploration of the experiences of mothers will provide healthcare professionals and families with an understanding of the situation. This understanding is essential for the effective management and delivery of treatment.
摘要：
背景：一般来说，母亲为患有唐氏综合症的儿童提供了大部分照顾。它们不仅在儿童状况的可接受性方面，而且在为DS儿童提供照料方面都提出了挑战。
目的：探讨印度尼西亚母亲养育DS儿童的经验，为了更好地了解他们的需求，这是提供治疗所必需的。
方法：采用内容分析法进行描述性定性研究。研究参与者（15名母亲）是有目的地从国家特殊学校的参与者中抽取的残疾学生。数据是通过半结构访谈收集的，并进行了音频记录。参与者的陈述进行了内容分析，随后应用了诚信原则。
结果：确定了描述参与者经历的五个主要主题：（1）育儿经历-影响，（2）特殊需要，（3）育儿障碍，（4）育儿促进者，和（5）母亲的期望。
结论：研究结果表明，母亲们从积极和消极的角度看待她们的处境。尽管这项探索性研究的样本量有限，结果为在特定文化背景下抚养DS儿童提供了新的见解。
结论：这项研究为家庭和医疗保健提供者提供了重要信息，以提高对该疾病及其适当管理方法的认识。重要的是，探索母亲的经历将使医疗保健专业人员和家庭了解情况。这种理解对于有效管理和提供治疗至关重要。
目的：探讨印度尼西亚母亲养育DS儿童的经验，为了更好地了解他们的需求，这是提供治疗所必需的。
方法：采用内容分析法进行描述性定性研究。研究参与者（15名母亲）是有目的地从国家特殊学校的参与者中抽取的残疾学生。数据是通过半结构访谈收集的，并进行了音频记录。参与者的陈述进行了内容分析，随后应用了诚信原则。
结果：确定了描述参与者经历的五个主要主题：（1）育儿经历-影响，（2）特殊需要，（3）育儿障碍，（4）育儿促进者，和（5）母亲的期望。
结论：研究结果表明，母亲们从积极和消极的角度看待她们的处境。尽管这项探索性研究的样本量有限，结果为在特定文化背景下抚养DS儿童提供了新的见解。
结论：这项研究为家庭和医疗保健提供者提供了重要信息，以提高对该疾病及其适当管理方法的认识。重要的是，探索母亲的经历将使医疗保健专业人员和家庭了解情况。这种理解对于有效管理和提供治疗至关重要。
