关键词: adolescent barriers and enablers cancer child determinants financial aid financial assistance financial support young adult

来  源:   DOI:10.1089/jayao.2023.0134

Abstract:
Background: The financial burden resulting from cancers on families is higher when it arises in young people compared with older adults. Previous research has provided insight into the financial toxicities associated with childhood cancer, but less is known about the efficacy of financial aid systems in reducing the financial burden on families. We conducted a scoping review to identify the determinants of success and failure of financial aid. Methods: Five databases were searched for articles published between January 1, 2000 and December 1, 2022. Dual processes were used to screen and select studies. Through thematic content analysis, we identified barriers and enablers of financial aid, categorised by country income level. Results: From 17 articles, which were evenly split between high-income countries and upper middle- to low-income countries, four major themes emerged: (1) accessibility of support, (2) delivery of support, (3) administration, and (4) psychosocial factors. Within these themes, the enablers identified were (1) support navigators, (2) establishing a direct contact between donors and beneficiaries, (3) implementation of digital solutions to improve outreach, and (4) using cultural and community values to encourage donor engagement. Conclusions: This scoping review identified the determinants of success and failure of financial aid in supporting families in the context of childhood, adolescent, and young adult (CAYA) cancers. By understanding the barriers and enablers identified in this review, organizations could develop pragmatic evidence-based care models and policies to ensure access to assistance is equitable and appropriate for families experiencing CAYA cancers.
摘要:
背景:与老年人相比,年轻人中癌症对家庭造成的经济负担更高。先前的研究提供了与儿童癌症相关的财务毒性的见解,但对经济援助制度在减轻家庭经济负担方面的功效知之甚少。我们进行了范围审查,以确定经济援助成功和失败的决定因素。方法:搜索五个数据库,查找2000年1月1日至2022年12月1日发表的文章。使用双重过程来筛选和选择研究。通过专题内容分析,我们确定了经济援助的障碍和促成因素,按国家收入水平分类。结果:从17篇文章中,在高收入国家和中上低收入国家之间平均分配,出现了四个主要主题:(1)支持的可及性,(2)提供支持,(3)行政、(4)社会心理因素。在这些主题中,确定的推动者是(1)支持导航员,(2)在捐赠者和受益者之间建立直接联系,(3)实施数字化解决方案,提高外展能力,(4)利用文化和社区价值观鼓励捐助者参与。结论:本范围审查确定了在童年背景下支持家庭的经济援助的成功和失败的决定因素,青春期,和年轻成人(CAYA)癌症。通过了解本审查中确定的障碍和促成因素,组织可以制定务实的循证护理模式和政策,以确保CAYA癌症患者的家庭获得援助是公平和适当的。
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