PDF(Pubmed)
Abstract：
The increasing demands for curated, high-quality research data are driving the emergence of a novel registry type. The need to assemble, curate, and export this data grows, and the conventional simplicity of registry models is driving the need for advanced, multimodal data registries-the dawn of the next-generation registry.
The article provides an outline of the technology roles and responsibilities needed for successful implementations of next-generation registries.
We propose a framework for the planning, construction, maintenance, and sustainability of this new registry type.
A rubric of organizational, computational, and human resource needs is discussed in detail, backed by over 40 years of combined in-the-field experiences by the authors.
A novel field, registry science, within the clinical research informatics domain, has arisen to offer its insights into conceiving, structuring, and sustaining this new breed of tools.
The article provides an outline of the technology roles and responsibilities needed for successful implementations of next-generation registries.
We propose a framework for the planning, construction, maintenance, and sustainability of this new registry type.
A rubric of organizational, computational, and human resource needs is discussed in detail, backed by over 40 years of combined in-the-field experiences by the authors.
A novel field, registry science, within the clinical research informatics domain, has arisen to offer its insights into conceiving, structuring, and sustaining this new breed of tools.
摘要：
目标：对策展的需求不断增加，高质量的研究数据正在推动一种新的注册类型的出现。需要组装，策展人,导出这些数据会增长，注册表模型的传统简单性推动了对高级的需求，多式联运数据登记处-下一代登记处的曙光。
方法：本文概述了成功实施下一代注册管理机构所需的技术角色和职责。
结果：我们提出了一个规划框架，建筑,维护,以及这种新注册类型的可持续性。
结论：组织，计算，详细讨论了人力资源需求，作者在40多年的综合现场经验的支持下。
结论：一个新颖的领域，注册科学，在临床研究信息学领域，已经出现了它对构思的见解，结构化，并维持这种新型工具。
方法：本文概述了成功实施下一代注册管理机构所需的技术角色和职责。
结果：我们提出了一个规划框架，建筑,维护,以及这种新注册类型的可持续性。
结论：组织，计算，详细讨论了人力资源需求，作者在40多年的综合现场经验的支持下。
结论：一个新颖的领域，注册科学，在临床研究信息学领域，已经出现了它对构思的见解，结构化，并维持这种新型工具。
