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Abstract：
This study aimed to explore perspectives and concerns regarding sexuality among adolescents and young adults (AYAs) possibly experiencing late effects after testicular germ cell tumor (TGCT) treatment. A qualitative study was performed in which semi-structured interviews were held with thirteen AYAs from a center of expertise for TGCT in the Netherlands. Data were analyzed using Braun and Clark\'s thematic analysis method. Seven interacting and interconnected themes were found: desire to have children, rediscovering sexuality, insecurity about sexual performance, acceptance of physical change, loss of masculinity, burden on relationship, and openness in discussing sexuality. Concerns about the desire to have children seem to play a significant role. In conclusion, TGCT patients face multiple changes (physical, emotional, relational, and sexual), followed by a difficult period of acceptance, after which a new phase of rediscovering sexuality appeared. These findings can help to make healthcare professionals aware of the underlying mechanisms and concerns about sexuality. Furthermore, insights can help to develop sexuality-themed items for a broader monitoring tool to structurally assess the late effects to support discussing sexuality.
摘要：
这项研究旨在探讨青少年和年轻人（AYAs）在睾丸生殖细胞肿瘤（TGCT）治疗后可能经历后期影响的性行为的观点和担忧。进行了一项定性研究，其中对来自荷兰TGCT专业中心的13个AYA进行了半结构化访谈。数据采用Braun和Clark的专题分析方法进行分析。发现了七个相互作用和相互联系的主题：想要孩子，重新发现性，关于性表现的不安全感，接受物理变化，失去男子气概，关系的负担，以及讨论性的开放性。对想要孩子的担忧似乎发挥了重要作用。总之,TGCT患者面临多种变化(身体，情感,关系,和性)，接下来是一段艰难的接受期，之后，重新发现性的新阶段出现了。这些发现有助于使医疗保健专业人员意识到有关性行为的潜在机制和担忧。此外，见解可以帮助开发以性为主题的项目，作为更广泛的监测工具，从结构上评估后期影响，以支持讨论性。
