PDF(Pubmed)
Abstract：
OBJECTIVE: Management of reproductive health-related issues is crucial for patients with SLE, given this is a disease that primarily affects women of childbearing age. Little is known as to how the 2020 American College of Rheumatology (ACR) Reproductive Health in Rheumatic Disease Guideline is experienced by an underserved, primarily Hispanic population and their physicians as it relates to pregnancy planning and contraception conversations. Given this population experiences high rates of unplanned pregnancies and worse SLE outcomes compared with the non-Hispanic white population, it is crucial to understand how reproductive health is discussed in this setting.
METHODS: A survey based on the 2020 ACR Reproductive Health Guideline was created and distributed in English and Spanish in the outpatient setting to 151 patients with SLE to determine patients\' beliefs, experiences and limitations with reproductive health discussions. Associations between categorical variables were evaluated using Pearson\'s χ2 or Fisher\'s exact test, as appropriate, and differences in continuous variables were assessed using Wilcoxon rank-sum test.
RESULTS: English language survey respondents were significantly more likely to report having conversations regarding contraception, pregnancy planning and peripartum medication use than the Spanish survey respondents. Two-thirds of all respondents relied on the rheumatologist as a top source of reproductive health information.
CONCLUSIONS: Disparities exist regarding reproductive health conversations on multiple topics between English-speaking and Spanish-speaking populations with SLE. Further understanding is needed to clarify why reproductive health conversations occur at lower frequencies in Spanish-speaking SLE populations.
METHODS: A survey based on the 2020 ACR Reproductive Health Guideline was created and distributed in English and Spanish in the outpatient setting to 151 patients with SLE to determine patients\' beliefs, experiences and limitations with reproductive health discussions. Associations between categorical variables were evaluated using Pearson\'s χ2 or Fisher\'s exact test, as appropriate, and differences in continuous variables were assessed using Wilcoxon rank-sum test.
RESULTS: English language survey respondents were significantly more likely to report having conversations regarding contraception, pregnancy planning and peripartum medication use than the Spanish survey respondents. Two-thirds of all respondents relied on the rheumatologist as a top source of reproductive health information.
CONCLUSIONS: Disparities exist regarding reproductive health conversations on multiple topics between English-speaking and Spanish-speaking populations with SLE. Further understanding is needed to clarify why reproductive health conversations occur at lower frequencies in Spanish-speaking SLE populations.
摘要：
目的：生殖健康相关问题的管理对于SLE患者至关重要，鉴于这是一种主要影响育龄妇女的疾病。鲜为人知的是，2020年美国风湿病学会（ACR）风湿病的生殖健康指南是如何被服务不足的人所经历的，主要是西班牙裔人口和他们的医生，因为它涉及怀孕计划和避孕对话。鉴于与非西班牙裔白人相比，该人群的计划外怀孕率很高，SLE结局更差。了解在这种情况下如何讨论生殖健康至关重要。
方法：根据2020ACR生殖健康指南创建了一项调查，并在门诊中以英语和西班牙语分发给151名SLE患者，以确定患者的信念，生殖健康讨论的经验和局限性。使用皮尔逊χ2或费舍尔精确检验评估分类变量之间的关联，在适当的情况下,使用Wilcoxon秩和检验评估连续变量的差异。
结果：英语语言调查受访者更有可能报告有关避孕的对话，怀孕计划和围产期药物的使用比西班牙受访者调查。三分之二的受访者依赖风湿病学家作为生殖健康信息的主要来源。
结论：在讲英语和讲西班牙语的SLE人群之间的生殖健康对话中存在差异。需要进一步了解以阐明为什么在讲西班牙语的SLE人群中生殖健康对话的频率较低。
方法：根据2020ACR生殖健康指南创建了一项调查，并在门诊中以英语和西班牙语分发给151名SLE患者，以确定患者的信念，生殖健康讨论的经验和局限性。使用皮尔逊χ2或费舍尔精确检验评估分类变量之间的关联，在适当的情况下,使用Wilcoxon秩和检验评估连续变量的差异。
结果：英语语言调查受访者更有可能报告有关避孕的对话，怀孕计划和围产期药物的使用比西班牙受访者调查。三分之二的受访者依赖风湿病学家作为生殖健康信息的主要来源。
结论：在讲英语和讲西班牙语的SLE人群之间的生殖健康对话中存在差异。需要进一步了解以阐明为什么在讲西班牙语的SLE人群中生殖健康对话的频率较低。
