PDF(Pubmed)
Abstract：
UNASSIGNED: To describe how patients with Parkinson\'s disease (PD) and care partners choose to share or withhold information from clinicians.
UNASSIGNED: This is a qualitative, descriptive study nested within a multisite, randomized clinical trial of outpatient palliative care compared to standard neurologic care for PD. Interviews with patients (n = 30) and care partners (n = 30) explored experiences communicating with neurology clinicians. Thematic analyses identified themes relevant to patient-care partner-clinician communication.
UNASSIGNED: There were four themes relevant to sharing and/or withholding information from clinicians: (1) Suppressing Concerns During Visits, (2) Care Partner Awareness of Patients\' Communication Barriers due to Cognitive Impairment, (3) Limited Sharing of Sensitive or Intimate Issues by Patients and Care Partners, and (4) Patient and Care Partner Suggestions to Overcome \'Holding Back\'.
UNASSIGNED: Limitations to communication between patients, care partners, and clinicians should be acknowledged and recognized in routine Parkinson\'s disease care to foster accurate disclosure of unmet palliative care and other needs. Triadic communication strategies may help patients and care partners talk about unmet palliative care needs.
UNASSIGNED: By recognizing that cognitive impairment and sensitive topics can be barriers, clinicians can adjust or adopt targeted communication strategies for identifying and discussing care needs.
UNASSIGNED: This is a qualitative, descriptive study nested within a multisite, randomized clinical trial of outpatient palliative care compared to standard neurologic care for PD. Interviews with patients (n = 30) and care partners (n = 30) explored experiences communicating with neurology clinicians. Thematic analyses identified themes relevant to patient-care partner-clinician communication.
UNASSIGNED: There were four themes relevant to sharing and/or withholding information from clinicians: (1) Suppressing Concerns During Visits, (2) Care Partner Awareness of Patients\' Communication Barriers due to Cognitive Impairment, (3) Limited Sharing of Sensitive or Intimate Issues by Patients and Care Partners, and (4) Patient and Care Partner Suggestions to Overcome \'Holding Back\'.
UNASSIGNED: Limitations to communication between patients, care partners, and clinicians should be acknowledged and recognized in routine Parkinson\'s disease care to foster accurate disclosure of unmet palliative care and other needs. Triadic communication strategies may help patients and care partners talk about unmet palliative care needs.
UNASSIGNED: By recognizing that cognitive impairment and sensitive topics can be barriers, clinicians can adjust or adopt targeted communication strategies for identifying and discussing care needs.
摘要：
■描述帕金森病（PD）患者和护理合作伙伴如何选择分享或隐瞒临床医生的信息。
■这是一个定性的，嵌套在多站点内的描述性研究，与PD的标准神经系统护理相比，门诊姑息治疗的随机临床试验。与患者（n=30）和护理伙伴（n=30）的访谈探讨了与神经科临床医生沟通的经验。主题分析确定了与患者护理伙伴-临床医生沟通相关的主题。
■与临床医生分享和/或隐瞒信息相关的四个主题：（1）抑制访问期间的担忧，(2)护理伙伴对认知障碍导致的患者沟通障碍的认识，(3)患者和护理伙伴有限分享敏感或亲密问题，(4)患者和护理伙伴建议克服“阻碍”。
■患者之间沟通的局限性，护理伙伴，在常规的帕金森病治疗中，临床医生应得到认可和认可，以促进未满足的姑息治疗和其他需求的准确披露。三位一体的沟通策略可以帮助患者和护理伙伴谈论未满足的姑息治疗需求。
■通过认识到认知障碍和敏感话题可能是障碍，临床医生可以调整或采用有针对性的沟通策略来识别和讨论护理需求.
■这是一个定性的，嵌套在多站点内的描述性研究，与PD的标准神经系统护理相比，门诊姑息治疗的随机临床试验。与患者（n=30）和护理伙伴（n=30）的访谈探讨了与神经科临床医生沟通的经验。主题分析确定了与患者护理伙伴-临床医生沟通相关的主题。
■与临床医生分享和/或隐瞒信息相关的四个主题：（1）抑制访问期间的担忧，(2)护理伙伴对认知障碍导致的患者沟通障碍的认识，(3)患者和护理伙伴有限分享敏感或亲密问题，(4)患者和护理伙伴建议克服“阻碍”。
■患者之间沟通的局限性，护理伙伴，在常规的帕金森病治疗中，临床医生应得到认可和认可，以促进未满足的姑息治疗和其他需求的准确披露。三位一体的沟通策略可以帮助患者和护理伙伴谈论未满足的姑息治疗需求。
■通过认识到认知障碍和敏感话题可能是障碍，临床医生可以调整或采用有针对性的沟通策略来识别和讨论护理需求.
