Abstract:
The aim of this project was to explore the understanding and awareness of dementia in the Pakistani-origin community in a deprived urban region of the UK. The study was unique in accessing and interviewing Pothwari speakers, some of whom could not read or understand spoken English. Data generated from an earlier study were used to construct five scenarios, which were used as the basis for face-to-face semi-structured interviews with 11 male and female participants from the Pakistani-origin community spanning two generations. Braun and Clarke\'s six phases of thematic analysis were used to analyse the data to answer the research questions. Themes constructed from these interviews indicated a lack of awareness and understanding of dementia, a range of attitudes and assumptions, reluctance to seek external support, and a significant role for the cultural background in shaping the individuals\' responses. The study found that poor understanding, cultural differences, and language issues presented barriers to accessing services in the British Pakistani community, particularly among those who had been born in Pakistan and/or spoke Pothwari in preference to English. Services and information may need to be offered by Pothwari speakers in order to reach this neglected sector of the population.
摘要:
该项目的目的是探索英国贫困城市地区巴基斯坦裔社区对痴呆症的理解和认识。这项研究在访问和采访Pothwari演讲者方面是独一无二的,他们中的一些人无法阅读或理解英语口语。早期研究产生的数据被用来构建五种情景,作为对来自巴基斯坦裔社区的11名男女参与者进行面对面半结构化访谈的基础,这些访谈跨越两代人。Braun和Clarke的六个主题分析阶段用于分析数据以回答研究问题。从这些访谈中构建的主题表明缺乏对痴呆症的认识和理解,一系列的态度和假设,不愿寻求外部支持,以及文化背景在塑造个人反应方面的重要作用。研究发现,缺乏理解,文化差异,语言问题给英国巴基斯坦社区获得服务带来了障碍,特别是在巴基斯坦出生和/或优先使用英语的人。Pothwari发言者可能需要提供服务和信息,以便接触到这一被忽视的人口群体。