关键词: dementia diversity experiential and immersive learning lived experience patient-family-oriented care society transdisciplinarity

Mesh : Humans Social Stigma Spain Dementia / therapy

来  源:   DOI:10.1002/alz.13644   PDF(Pubmed)

Abstract:
Coping with dementia requires an integrated approach encompassing personal, health, research, and community domains. Here we describe \"Walking the Talk for Dementia,\" an immersive initiative aimed at empowering people with dementia, enhancing dementia understanding, and inspiring collaborations. This initiative involved 300 participants from 25 nationalities, including people with dementia, care partners, clinicians, policymakers, researchers, and advocates for a 4-day, 40 km walk through the Camino de Santiago de Compostela, Spain. A 2-day symposium after the journey provided novel transdisciplinary and horizontal structures, deconstructing traditional hierarchies. The innovation of this initiative lies in its ability to merge a physical experience with knowledge exchange for diversifying individuals\' understanding of dementia. It showcases the transformative potential of an immersive, embodied, and multi-experiential approach to address the complexities of dementia collaboratively. The initiative offers a scalable model to enhance understanding, decrease stigma, and promote more comprehensive and empathetic dementia care and research.
摘要:
应对痴呆症需要一种综合的方法,包括个人,健康,研究,和社区域名。在这里,我们描述了“为痴呆症说话”,“一项身临其境的倡议,旨在增强痴呆症患者的能力,加强对痴呆症的理解,和鼓舞人心的合作。这项倡议涉及来自25个国家的300名参与者,包括痴呆症患者,护理伙伴,临床医生,政策制定者,研究人员,提倡4天,40公里步行穿过圣地亚哥的卡米诺,西班牙。旅程后为期2天的研讨会提供了新颖的跨学科和水平结构,解构传统等级制度。该计划的创新之处在于它能够将身体体验与知识交流相结合,以使个人对痴呆症的理解多样化。它展示了身临其境的变革潜力,具体体现,和多经验方法共同解决痴呆症的复杂性。该计划提供了一个可扩展的模型,以增强理解,减少污名,并促进更全面和善解人意的痴呆症护理和研究。
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