Abstract:
Palliative care for adults with neuromuscular conditions is an emerging field. Previous guidelines regarding myotonic dystrophy and palliative care have only mentioned end-of-life care and little else. The following guidelines have been written using national experts as a description of best practice as part of the Dystrophia Myotonica National Care Guidelines Consortium.
摘要:
患有神经肌肉疾病的成年人的姑息治疗是一个新兴领域。以前关于肌强直性营养不良和姑息治疗的指南只提到了临终关怀,其他很少。以下指南是使用国家专家编写的,作为最佳实践的描述,作为Myotonica营养不良症国家护理指南联盟的一部分。