Abstract:
We undertook a scoping review to identify the factors outside of current fetal alcohol spectrum disorder (FASD) diagnostic criteria to be considered as part of a holistic assessment process. This included physical, social, cultural, mental health and wellbeing factors to inform targeted recommendations and supports to improve outcomes for individuals with FASD. Evidence from this review will be used to inform the revision of the Australian Guide to the Diagnosis of FASD. Six electronic databases were searched. Studies were eligible if they included factors outside of the diagnostic criteria that cover dysmorphology, growth restriction, neurodevelopmental impairments. Data charting and content analysis were performed to synthesize the results. One hundred twenty-one studies were included that spanned 12 key areas These included physical health, sleep, adverse postnatal experiences, substance use/other risk-taking behaviors, contact with the criminal justice system, mental health, First Nations cultural considerations, transition to adult roles, involvement with the out-of-home care system, feeding and eating, strengths/interests/external resources and incontinence. Areas to be considered as part of a holistic assessment and diagnostic process spanned individual, family, and system level factors. Results provide guidance for clinicians on the wide range of factors that could influence long-term health, development, and wellbeing for individuals with prenatal alcohol exposure and FASD. In practice, this guidance can be used to inform an individualized assessment process to facilitate tailored recommendations and supports to best meet the complex needs of individuals living with FASD and their families.
摘要:
我们进行了范围审查,以确定当前胎儿酒精谱系障碍(FASD)诊断标准之外的因素,作为整体评估过程的一部分。这包括物理,社会,文化,心理健康和福祉因素,以提供有针对性的建议和支持,以改善FASD患者的预后。此次审查的证据将用于为《澳大利亚FASD诊断指南》的修订提供信息。搜索了六个电子数据库。如果研究包括涵盖形态学畸形的诊断标准之外的因素,生长限制,神经发育障碍。进行了数据图表和内容分析以综合结果。纳入了121项研究,涉及12个关键领域,包括身体健康,睡眠,不良的产后经历,物质使用/其他冒险行为,与刑事司法系统的联系,心理健康,第一民族的文化考虑,过渡到成人角色,参与家庭外护理系统,喂养和进食,优势/兴趣/外部资源和失禁。被视为整体评估和诊断过程的一部分的领域跨越个人,家庭,和系统级因素。结果为临床医生提供了可能影响长期健康的广泛因素的指导。发展,以及产前酒精暴露和FASD患者的健康。在实践中,本指南可用于为个性化评估过程提供信息,以促进量身定制的建议和支持,从而最好地满足与FASD生活在一起的个人及其家人的复杂需求。