Abstract：
Pediatric hospice is a new terminology in current medical literature. Implementation of pediatric hospice care in oncology setting is a vast but subspecialized field of research and practice. However, it is accompanied by substantial uncertainties, shortages and unexplored sections. The lack of globally established definitions, principles, and guidelines in this field has adversely impacted the quality of end-of-life experiences for children with hospice needs worldwide. To address this gap, we conducted a comprehensive review of scientific literature, extracting and compiling the available but sparse data on pediatric oncology hospice from the PubMed database. Our systematic approach led to development of a well-organized structure introducing the foundational elements, highlighting complications, and uncovering hidden gaps in this critical area. This structured framework comprises nine major categories including general ideology, population specifications, role of parents and family, psychosocial issues, financial complications, service locations, involved specialties, regulations, and quality improvement. This platform can serve as a valuable resource in establishing a scientifically reliable foundation for future experiments and practices in pediatric oncology hospice.
摘要：
小儿临终关怀是当前医学文献中的新术语。在肿瘤学环境中实施儿科临终关怀护理是一个广阔但又亚专业的研究和实践领域。然而,它伴随着巨大的不确定性，短缺和未开发的部分。缺乏全球公认的定义，原则,和该领域的指导方针对全球有临终关怀需求的儿童的临终关怀体验质量产生了不利影响。为了解决这个差距，我们对科学文献进行了全面的回顾，从PubMed数据库中提取和编译有关儿科肿瘤临终关怀的可用但稀疏的数据。我们的系统方法导致了一个组织良好的结构的发展，引入了基本要素，突出并发症，并发现这一关键领域的隐藏漏洞。这个结构化的框架包括九个主要类别，包括一般意识形态，人口规范，父母和家庭的角色，社会心理问题,财务复杂，服务地点,涉及专业，法规,和质量改进。该平台可以作为宝贵的资源，为儿科肿瘤临终关怀的未来实验和实践建立科学可靠的基础。
