Abstract：
We invited individuals aged above 16 years with a congenital transverse reduction deficiency at and above the wrist born in Norway between 1970 and 2006 to complete the short version of the Disabilities of the Arm, Shoulder and Hand Outcome Measure, the 5-Level EuroQoL-5-Dimension instrument, the RAND 36-Item Short Form Health Survey and a single-item questionnaire on arm function, appearance, pain and prosthesis wear. Of 154 eligible participants, 58 (38%) responded. Their scores were not different from the general population. All had been offered prostheses, and 56 (97%) had been fitted at a median age of 1 year (interquartile range 0-2.8). Of the participants, 37 (64%) were still prosthesis wearers, while 21 (36%) were non-wearers or using gripping devices only. Prosthesis wearers had higher levels of \'vitality\' as assessed by the RAND-36 and rated their arm appearance higher, but there were no other score differences, indicating that prosthesis rejection is not associated with worse functional outcomes.Level of evidence: III.
摘要：
我们邀请了1970年至2006年之间在挪威出生的16岁以上有先天性横向减少缺陷的人完成手臂残疾的简短版本，肩和手的结果测量，5级EuroQoL-5维仪器，RAND36项简式健康调查和一项关于手臂功能的单项目问卷，外观,疼痛和假体磨损。在154名符合条件的参与者中，58（38%）回答。他们的分数与普通人群没有什么不同。所有人都被提供了假肢，和56（97％）的中位年龄为1岁（四分位数范围0-2.8）。在参与者中，37人(64%)仍然是假肢佩戴者，而21名(36%)是非佩戴者或仅使用夹持装置。根据RAND-36的评估，假肢佩戴者的“活力”水平更高，并对他们的手臂外观评价更高，但是没有其他分数差异，表明假体排斥与较差的功能结局无关。证据等级：III.
