关键词: Canada PICU caregiver child children clinical utility cognition development education educational educational tool end users family resource focus groups, prototyping intensive care unit pediatric ICU pediatric delirium education pediatric intensive care unit quality of life tool users

来  源:   DOI:10.2196/53120   PDF(Pubmed)

Abstract:
UNASSIGNED: Pediatric intensive care unit (PICU)-associated delirium contributes to a decline in postdischarge quality of life, with worse outcomes for individuals with delayed identification. As delirium screening rates remain low within PICUs, caregivers may be able to assist with early detection, for which they need more education, as awareness of pediatric delirium among caregivers remains limited.
UNASSIGNED: This study aimed to develop an educational tool for caregivers to identify potential delirium symptoms during their child\'s PICU stay, educate them on how to best support their child if they experience delirium, and guide them to relevant family resources.
UNASSIGNED: Web-based focus groups were conducted at a tertiary pediatric hospital with expected end users of the tool (ie, PICU health care professionals and caregivers of children with an expected PICU length of stay of over 48 h) to identify potential educational information for inclusion in a family resource guide and to identify strategies for effective implementation. Data were analyzed thematically to generate requirements to inform prototype development. Participants then provided critical feedback on the initial prototype, which guided the final design.
UNASSIGNED: In all, 24 participants (18 health care professionals and 6 caregivers) attended 7 focus groups. Participants identified five informational sections for inclusion: (1) delirium definition, (2) key features of delirium (signs and symptoms), (3) postdischarge outcomes associated with delirium, (4) tips to inform family-centered care, and (5) education or supportive resources. Participants identified seven design requirements: information should (1) be presented in an order that resembles the structure of the clinical discussion around delirium; (2) increase accessibility, recall, and preparedness by providing multiple formats; (3) aim to reduce stress by implementing positive framing; (4) minimize cognitive load to ensure adequate information processing; (5) provide supplemental electronic resources via QR codes; (6) emphasize collaboration between caregivers and the health care team; and (7) use prompting questions to act as a call to action for caregivers.
UNASSIGNED: Key design requirements derived from end-user feedback were established and guided the development of a novel pediatric delirium education tool. Implementing this tool into regular practice has the potential to reduce distress and assist in the early recognition and treatment of delirium in the PICU domain. Future evaluation of its clinical utility is necessary.
摘要:
儿科重症监护病房(PICU)相关的谵妄导致出院后生活质量下降,对于身份识别延迟的人来说,结果更糟。由于PICU内谵妄筛查率仍然很低,护理人员可能能够协助早期发现,他们需要更多的教育,由于护理人员对小儿谵妄的认识仍然有限。
这项研究旨在为看护者开发一种教育工具,以识别孩子在PICU逗留期间的潜在谵妄症状,教育他们如何最好地支持他们的孩子,如果他们遇到谵妄,并引导他们了解相关的家庭资源。
基于Web的焦点小组在三级儿科医院进行,预期该工具的最终用户(即,PICU卫生保健专业人员和预期PICU住院时间超过48小时的儿童护理人员),以确定潜在的教育信息,以纳入家庭资源指南,并确定有效实施的策略。对数据进行了主题分析,以生成需求,从而为原型开发提供信息。然后,参与者对初始原型提供了关键反馈,指导最终设计。
总之,24名参与者(18名卫生保健专业人员和6名护理人员)参加了7个焦点小组。参与者确定了五个信息部分供纳入:(1)谵妄定义,(2)谵妄的主要特征(体征和症状),(3)出院后结果与谵妄相关,(4)提示以家庭为中心的护理,(5)教育或支持资源。参与者确定了七个设计要求:信息应(1)以类似于谵妄临床讨论结构的顺序呈现;(2)增加可及性,召回,通过提供多种格式和准备;(3)旨在通过实施积极的框架来减轻压力;(4)最小化认知负荷以确保充分的信息处理;(5)通过QR码提供补充电子资源;(6)强调护理人员与医疗保健团队之间的合作;(7)使用提示问题作为护理人员的行动呼吁。
建立了源自最终用户反馈的关键设计要求,并指导了新型儿科谵妄教育工具的开发。在常规实践中实施该工具有可能减少痛苦,并有助于PICU领域谵妄的早期识别和治疗。未来对其临床效用的评估是必要的。
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