PDF(Pubmed)
Abstract：
UNASSIGNED: Involving patients and carers in the development of blended collaborative care (BCC) interventions for multimorbid heart failure (HF) patients is recommended but rarely practised, and research on the patient perspective is scarce. The aim of this study is to investigate patients\' and carers\' care-related needs and preferences to better customize a novel international BCC intervention.
UNASSIGNED: A qualitative study design using framework analysis was employed. The study was performed in accordance with the EQUATOR standards for reporting qualitative research (SRQR). Patients aged at least 65 years with HF and at least two other physical diseases as well as their carers completed semistructured interviews in Germany, Italy, and Denmark. Based on these interviews, personas (prototype profiles of patients and carers) were created.
UNASSIGNED: Data from interviews with 25 patients and 17 carers were analysed. Initially, seven country-specific personas were identified, which were iteratively narrowed down to a final set of 3 personas: (a) the one who needs and wants support, (b) the one who has accepted their situation with HF and reaches out when necessary, and (c) the one who feels neglected by the health care system. Carers identifying with the last persona showed high levels of psychological stress and a high need for support.
UNASSIGNED: This is the first international qualitative study on patients\' and carers\' needs regarding a BCC intervention using the creation of personas. Across three European countries, data from interviews were used to develop three contrasting personas. Instead of providing \"one size fits all\" interventions, the results indicate that BCC interventions should offer different approaches based on the needs of individual patients and carers. The personas will serve as a basis for the development of a novel BCC intervention as part of the EU project ESCAPE (Evaluation of a patient-centred biopSychosocial blended collaborative CAre Pathway for the treatment of multimorbid Elderly patients).
UNASSIGNED: A qualitative study design using framework analysis was employed. The study was performed in accordance with the EQUATOR standards for reporting qualitative research (SRQR). Patients aged at least 65 years with HF and at least two other physical diseases as well as their carers completed semistructured interviews in Germany, Italy, and Denmark. Based on these interviews, personas (prototype profiles of patients and carers) were created.
UNASSIGNED: Data from interviews with 25 patients and 17 carers were analysed. Initially, seven country-specific personas were identified, which were iteratively narrowed down to a final set of 3 personas: (a) the one who needs and wants support, (b) the one who has accepted their situation with HF and reaches out when necessary, and (c) the one who feels neglected by the health care system. Carers identifying with the last persona showed high levels of psychological stress and a high need for support.
UNASSIGNED: This is the first international qualitative study on patients\' and carers\' needs regarding a BCC intervention using the creation of personas. Across three European countries, data from interviews were used to develop three contrasting personas. Instead of providing \"one size fits all\" interventions, the results indicate that BCC interventions should offer different approaches based on the needs of individual patients and carers. The personas will serve as a basis for the development of a novel BCC intervention as part of the EU project ESCAPE (Evaluation of a patient-centred biopSychosocial blended collaborative CAre Pathway for the treatment of multimorbid Elderly patients).
摘要：
建议患者和护理人员参与针对多高血压心力衰竭（HF）患者的混合协作护理（BCC）干预措施的开发，但很少实施。对患者观点的研究很少。这项研究的目的是调查患者和护理人员的护理相关需求和偏好，以更好地定制新的国际BCC干预措施。
■采用了使用框架分析的定性研究设计。本研究按照EQUATOR标准报告定性研究(SRQR)进行。在德国，年龄至少为65岁的HF和至少两种其他身体疾病的患者及其护理人员完成了半结构化访谈，意大利,和丹麦。基于这些采访,创建了角色(患者和护理人员的原型档案).
■对来自25名患者和17名护理人员的访谈数据进行了分析。最初，确定了七个特定国家的角色，迭代地缩小到最后一组3个角色:(a)需要和想要支持的人，(b)接受他们在HF的情况并在必要时伸出援手的人，和(c)感到被医疗保健系统忽视的人。照顾者认同最后一个角色，表现出高度的心理压力和高度的支持需求。
■这是关于患者和护理人员关于BCC干预需求的首次国际定性研究，使用角色的创建。在三个欧洲国家，来自访谈的数据被用来发展三个对比的角色。而不是提供“一刀切”的干预措施，结果表明,BCC干预应根据个体患者和护理人员的需求提供不同的方法.这些角色将作为欧盟项目ESCAPE（评估以患者为中心的生物Sychosocial混合协作CAre途径治疗多老年患者）的一部分，作为开发新的BCC干预措施的基础。
■采用了使用框架分析的定性研究设计。本研究按照EQUATOR标准报告定性研究(SRQR)进行。在德国，年龄至少为65岁的HF和至少两种其他身体疾病的患者及其护理人员完成了半结构化访谈，意大利,和丹麦。基于这些采访,创建了角色(患者和护理人员的原型档案).
■对来自25名患者和17名护理人员的访谈数据进行了分析。最初，确定了七个特定国家的角色，迭代地缩小到最后一组3个角色:(a)需要和想要支持的人，(b)接受他们在HF的情况并在必要时伸出援手的人，和(c)感到被医疗保健系统忽视的人。照顾者认同最后一个角色，表现出高度的心理压力和高度的支持需求。
■这是关于患者和护理人员关于BCC干预需求的首次国际定性研究，使用角色的创建。在三个欧洲国家，来自访谈的数据被用来发展三个对比的角色。而不是提供“一刀切”的干预措施，结果表明,BCC干预应根据个体患者和护理人员的需求提供不同的方法.这些角色将作为欧盟项目ESCAPE（评估以患者为中心的生物Sychosocial混合协作CAre途径治疗多老年患者）的一部分，作为开发新的BCC干预措施的基础。
