PDF(Pubmed)
Abstract：
Background: Failure in early diagnosis of myasthenia gravis (MG) and the risks of taking certain medications and undergoing surgery and anesthesia can lead to severe respiratory disorders and death. However, there are therapeutic measures that significantly control the disease and improve individual\'s functionality. Methods: First, an expert panel was formed, and a needs assessment questionnaire was prepared for the information elements and the capabilities required for the application and provided to neurologists with a subspecialty fellowship in neuromuscular diseases. Then, based on the analyzed results, the application was designed and created in 2 versions (physician and patient), and in 2 languages (Persian and English). Eventually, a questionnaire for user interaction and satisfaction was provided to 5 relevant physicians to evaluate the application. Results: The results showed that neurologists considered all items of the needs assessment questionnaire to be 100% essential. The capabilities of the application included registering the medication name and dose, recording symptoms and complaints by the patient, completing standard questionnaires, online chat, medication reminder, sending alerts to the doctor when the patient is unwell, and providing a variety of reports. The usability evaluation showed that neurologists evaluated the application at a good level with the average score of 8.23 ± 0.47 (out of 9 points). Conclusion: In the long run, using this technology can reduce costs, improve patients\' quality of life (QOL) and health care, change health behaviors, and ultimately, improve individual\'s health.
摘要：
背景：重症肌无力（MG）的早期诊断失败以及服用某些药物以及接受手术和麻醉的风险可导致严重的呼吸系统疾病和死亡。然而,有治疗措施可以显著控制疾病并改善个体的功能。方法：首先，成立了一个专家小组，并为应用所需的信息要素和能力准备了需求评估问卷，并提供给具有神经肌肉疾病亚专业研究金的神经科医师。然后，根据分析的结果，该应用程序以2个版本（医生和患者）设计和创建，和两种语言（波斯语和英语）。最终,我们向5名相关医师提供了用户互动和满意度问卷,以评估应用.结果：结果显示，神经科医生认为需求评估问卷的所有项目都是100％必不可少的。应用程序的功能包括注册药物名称和剂量，记录患者的症状和投诉，完成标准问卷，网上聊天,用药提醒,当病人身体不适时，向医生发出警报，并提供各种报告。可用性评估表明，神经科医生对应用程序的评估处于良好水平，平均得分为8.23±0.47（满分9分）。结论：从长远来看，使用这种技术可以降低成本，改善患者的生活质量（QOL）和医疗保健，改变健康行为，最终,改善个人的健康。
