PDF(Pubmed)
Abstract：
OBJECTIVE: This study explores the impact of the COVID-19 pandemic on families with children diagnosed with neuropsychiatric disorders, focusing on stress dynamics and quality of life.
METHODS: A longitudinal survey was conducted over three years (2020-2022) involving 168 families. The survey included data on demographics, diagnosed conditions, access to therapies, mental well-being, and perceived challenges.
RESULTS: The study involved 62, 51, and 55 families in 2020, 2021, and 2022, respectively. ADHD emerged as the most prevalent condition, diagnosed in approximately 32% of the children. The pandemic significantly affected therapy access, with parents reporting a decrease from an average score of 8.1 in 2020 to 6.5 in 2022 (p = 0.029). Parents also reported increased feelings of being overwhelmed, peaking at 8.0 in 2021 before declining to 6.3 in 2022 (p = 0.017). Despite these challenges, there was a positive trend in family mental well-being, with scores increasing from 5.1 in 2020 to 6.7 in 2022 (p = 0.031). The Parental Stress Index (PSI) indicated decreasing trends in Emotional Stress and Parent-Child Communication Difficulties (p < 0.001), and Behavioral Challenges in children showed a significant reduction across the years (p < 0.001). The Hospital Anxiety and Depression Scale (HADS) reflected a moderate reduction in anxiety levels from 7.6 in 2020 to 6.0 in 2022 (p = 0.038), although depression scores did not show a significant change.
CONCLUSIONS: The COVID-19 pandemic introduced notable challenges for families with neuropsychiatrically diagnosed children, particularly in therapy access and increased parental stress. However, the study also reveals a general improvement in family dynamics, mental well-being, and a decrease in behavioral challenges over time. The necessity of this study stems from the critical need to examine the impact of the COVID-19 pandemic on families with neuropsychiatrically diagnosed children, focusing on their resilience and adaptation in navigating therapy access, parental stress, and overall mental well-being.
METHODS: A longitudinal survey was conducted over three years (2020-2022) involving 168 families. The survey included data on demographics, diagnosed conditions, access to therapies, mental well-being, and perceived challenges.
RESULTS: The study involved 62, 51, and 55 families in 2020, 2021, and 2022, respectively. ADHD emerged as the most prevalent condition, diagnosed in approximately 32% of the children. The pandemic significantly affected therapy access, with parents reporting a decrease from an average score of 8.1 in 2020 to 6.5 in 2022 (p = 0.029). Parents also reported increased feelings of being overwhelmed, peaking at 8.0 in 2021 before declining to 6.3 in 2022 (p = 0.017). Despite these challenges, there was a positive trend in family mental well-being, with scores increasing from 5.1 in 2020 to 6.7 in 2022 (p = 0.031). The Parental Stress Index (PSI) indicated decreasing trends in Emotional Stress and Parent-Child Communication Difficulties (p < 0.001), and Behavioral Challenges in children showed a significant reduction across the years (p < 0.001). The Hospital Anxiety and Depression Scale (HADS) reflected a moderate reduction in anxiety levels from 7.6 in 2020 to 6.0 in 2022 (p = 0.038), although depression scores did not show a significant change.
CONCLUSIONS: The COVID-19 pandemic introduced notable challenges for families with neuropsychiatrically diagnosed children, particularly in therapy access and increased parental stress. However, the study also reveals a general improvement in family dynamics, mental well-being, and a decrease in behavioral challenges over time. The necessity of this study stems from the critical need to examine the impact of the COVID-19 pandemic on families with neuropsychiatrically diagnosed children, focusing on their resilience and adaptation in navigating therapy access, parental stress, and overall mental well-being.
摘要：
目的：本研究探讨了COVID-19大流行对被诊断患有神经精神疾病的儿童家庭的影响，专注于压力动态和生活质量。
方法：进行了为期三年（2020-2022年）的纵向调查，涉及168个家庭。调查包括人口统计数据，诊断条件,获得治疗，心理健康，和感知的挑战。
结果：该研究分别涉及2020年，2021年和2022年的62、51和55个家庭。多动症成为最普遍的疾病，在大约32％的儿童中诊断。大流行严重影响了治疗机会，父母报告从2020年的8.1分下降到2022年的6.5分（p=0.029）。家长们还报告说，越来越多的人感到不知所措，2021年达到8.0的峰值，2022年降至6.3（p=0.017）。尽管面临这些挑战,家庭心理健康有一个积极的趋势，分数从2020年的5.1增加到2022年的6.7（p=0.031）。父母压力指数（PSI）表明情绪压力和亲子沟通困难呈下降趋势（p<0.001），儿童的行为挑战显示出逐年显著降低(p<0.001)。医院焦虑和抑郁量表（HADS）反映了焦虑水平从2020年的7.6下降到2022年的6.0（p=0.038），虽然抑郁评分没有显著变化.
结论：COVID-19大流行给患有神经精神病学诊断的儿童的家庭带来了显著的挑战，特别是在获得治疗和增加父母的压力。然而,这项研究还揭示了家庭动态的普遍改善，心理健康，随着时间的推移，行为挑战也会减少。这项研究的必要性源于迫切需要检查COVID-19大流行对患有神经精神病学诊断儿童的家庭的影响，专注于他们在导航治疗时的韧性和适应性，父母的压力,和整体心理健康。
方法：进行了为期三年（2020-2022年）的纵向调查，涉及168个家庭。调查包括人口统计数据，诊断条件,获得治疗，心理健康，和感知的挑战。
结果：该研究分别涉及2020年，2021年和2022年的62、51和55个家庭。多动症成为最普遍的疾病，在大约32％的儿童中诊断。大流行严重影响了治疗机会，父母报告从2020年的8.1分下降到2022年的6.5分（p=0.029）。家长们还报告说，越来越多的人感到不知所措，2021年达到8.0的峰值，2022年降至6.3（p=0.017）。尽管面临这些挑战,家庭心理健康有一个积极的趋势，分数从2020年的5.1增加到2022年的6.7（p=0.031）。父母压力指数（PSI）表明情绪压力和亲子沟通困难呈下降趋势（p<0.001），儿童的行为挑战显示出逐年显著降低(p<0.001)。医院焦虑和抑郁量表（HADS）反映了焦虑水平从2020年的7.6下降到2022年的6.0（p=0.038），虽然抑郁评分没有显著变化.
结论：COVID-19大流行给患有神经精神病学诊断的儿童的家庭带来了显著的挑战，特别是在获得治疗和增加父母的压力。然而,这项研究还揭示了家庭动态的普遍改善，心理健康，随着时间的推移，行为挑战也会减少。这项研究的必要性源于迫切需要检查COVID-19大流行对患有神经精神病学诊断儿童的家庭的影响，专注于他们在导航治疗时的韧性和适应性，父母的压力,和整体心理健康。
