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Abstract：
Existing advance care planning (ACP) definitional frameworks apply to individuals with decision-making capacity. We aimed to conceptualize ACP for dementia in terms of its definition and issues that deserve particular attention.
Delphi study with phases: (A) adaptation of a generic ACP framework by a task force of the European Association for Palliative Care (EAPC); (B) four online surveys by 107 experts from 33 countries, September 2021 to June 2022; (C) approval by the EAPC board.
ACP in dementia was defined as a communication process adapted to the person\'s capacity, which includes, and is continued with, family if available. We identified pragmatic boundaries regarding participation and time (i.e., current or end-of-life care). Three interrelated issues that deserve particular attention were capacity, family, and engagement and communication.
A communication and relationship-centered definitional framework of ACP in dementia evolved through international consensus supporting inclusiveness of persons with dementia and their family.
This article offers a consensus definitional framework of advance care planning in dementia. The definition covers all stages of capacity and includes family caregivers. Particularly important are (1) capacity, (2) family, (3) engagement, and communication. Fluctuating capacity was visualized in relation to roles and engaging stakeholders.
Delphi study with phases: (A) adaptation of a generic ACP framework by a task force of the European Association for Palliative Care (EAPC); (B) four online surveys by 107 experts from 33 countries, September 2021 to June 2022; (C) approval by the EAPC board.
ACP in dementia was defined as a communication process adapted to the person\'s capacity, which includes, and is continued with, family if available. We identified pragmatic boundaries regarding participation and time (i.e., current or end-of-life care). Three interrelated issues that deserve particular attention were capacity, family, and engagement and communication.
A communication and relationship-centered definitional framework of ACP in dementia evolved through international consensus supporting inclusiveness of persons with dementia and their family.
This article offers a consensus definitional framework of advance care planning in dementia. The definition covers all stages of capacity and includes family caregivers. Particularly important are (1) capacity, (2) family, (3) engagement, and communication. Fluctuating capacity was visualized in relation to roles and engaging stakeholders.
摘要：
背景：现有的预先护理计划（ACP）定义框架适用于具有决策能力的个人。我们旨在根据ACP的定义和值得特别关注的问题对其进行概念化。
方法：Delphi研究分阶段进行：（A）欧洲姑息治疗协会（EAPC）工作组对通用ACP框架的调整；（B）来自33个国家的107名专家进行的四次在线调查，2021年9月至2022年6月；(C)EAPC董事会批准。
结果：痴呆症中的ACP被定义为适应人的能力的沟通过程，其中包括，并继续，家庭，如果可用。我们确定了关于参与和时间的务实界限(即，当前或临终关怀)。值得特别关注的三个相互关联的问题是能力，家庭,参与和沟通。
结论：以沟通和关系为中心的ACP在痴呆症中的定义框架是通过支持痴呆症患者及其家庭的包容性的国际共识而发展起来的。
结论：这篇文章提供了一个关于痴呆的预先护理计划的共识性定义框架。该定义涵盖能力的所有阶段，并包括家庭护理人员。特别重要的是（1）能力，（2）家庭，(3)参与,和沟通。根据角色和参与利益相关者的关系，可视化了波动能力。
方法：Delphi研究分阶段进行：（A）欧洲姑息治疗协会（EAPC）工作组对通用ACP框架的调整；（B）来自33个国家的107名专家进行的四次在线调查，2021年9月至2022年6月；(C)EAPC董事会批准。
结果：痴呆症中的ACP被定义为适应人的能力的沟通过程，其中包括，并继续，家庭，如果可用。我们确定了关于参与和时间的务实界限(即，当前或临终关怀)。值得特别关注的三个相互关联的问题是能力，家庭,参与和沟通。
结论：以沟通和关系为中心的ACP在痴呆症中的定义框架是通过支持痴呆症患者及其家庭的包容性的国际共识而发展起来的。
结论：这篇文章提供了一个关于痴呆的预先护理计划的共识性定义框架。该定义涵盖能力的所有阶段，并包括家庭护理人员。特别重要的是（1）能力，（2）家庭，(3)参与,和沟通。根据角色和参与利益相关者的关系，可视化了波动能力。
