Abstract：
UNASSIGNED: COVID-19 has significantly impacted the care of children with chronic illness. There is a paucity of data on issues faced by parents of children with epilepsy (CWE) in an Indian setup.
UNASSIGNED: The objective was to describe the parental perspective of the problems faced by them on the care of their CWE during the first wave of the COVID-19 pandemic.
UNASSIGNED: Parents of CWE who physically visited the clinic for their follow-up visit were asked to narrate their experiences about the problems they faced during the first lockdown due to COVID-19. The narratives were audio recorded, and transcripts were analyzed using thematic analysis to arrive at broad themes.
UNASSIGNED: Four broad themes were identified: transport-related issues, medication-related issues, issues related to doctor consultation, and diagnostic delay. Limited transportation facilities, lack of appropriate social distancing norms in public transport and outpatient units, rigorous frisking by personnel during travel, fear of viral transmission during outpatient visits, nonavailability of antiseizure medications (ASMs) in local markets, lack of discounts by pharmacy, change of brands of ASM, and inability to undergo scheduled diagnostic investigations were some of the major issues raised by parents of CWE.
UNASSIGNED: Parents of CWE had trouble in transport to the hospital, inadequate access to ASMs, difficulties in doctor consultation, and delays in diagnostic investigations during the first COVID-19 pandemic lockdown.
UNASSIGNED: The objective was to describe the parental perspective of the problems faced by them on the care of their CWE during the first wave of the COVID-19 pandemic.
UNASSIGNED: Parents of CWE who physically visited the clinic for their follow-up visit were asked to narrate their experiences about the problems they faced during the first lockdown due to COVID-19. The narratives were audio recorded, and transcripts were analyzed using thematic analysis to arrive at broad themes.
UNASSIGNED: Four broad themes were identified: transport-related issues, medication-related issues, issues related to doctor consultation, and diagnostic delay. Limited transportation facilities, lack of appropriate social distancing norms in public transport and outpatient units, rigorous frisking by personnel during travel, fear of viral transmission during outpatient visits, nonavailability of antiseizure medications (ASMs) in local markets, lack of discounts by pharmacy, change of brands of ASM, and inability to undergo scheduled diagnostic investigations were some of the major issues raised by parents of CWE.
UNASSIGNED: Parents of CWE had trouble in transport to the hospital, inadequate access to ASMs, difficulties in doctor consultation, and delays in diagnostic investigations during the first COVID-19 pandemic lockdown.
摘要：
■COVID-19对慢性病儿童的护理产生了重大影响。在印度设置中，关于癫痫儿童（CWE）的父母面临的问题的数据很少。
目的是描述父母对COVID-19大流行第一波期间他们在CWE护理方面面临的问题的看法。
CWE的父母亲自去诊所进行随访，他们被要求讲述他们在新冠肺炎第一次封锁期间面临的问题。叙述是录音的，和成绩单使用主题分析进行分析，以得出广泛的主题。
■确定了四个广泛的主题：与运输有关的问题，药物相关问题,与医生咨询有关的问题，诊断延迟。交通设施有限，公共交通和门诊单位缺乏适当的社会距离规范，人员在旅行中进行严格的搜身，在门诊就诊时对病毒传播的恐惧，当地市场上没有抗癫痫药物(ASM)，药房缺乏折扣，ASM品牌的变化，无法接受预定的诊断性调查是CWE父母提出的一些主要问题.
■CWE的父母在送往医院时遇到了麻烦，对ASM的访问不足，医生咨询的困难，以及第一次COVID-19大流行封锁期间诊断调查的延误。
目的是描述父母对COVID-19大流行第一波期间他们在CWE护理方面面临的问题的看法。
CWE的父母亲自去诊所进行随访，他们被要求讲述他们在新冠肺炎第一次封锁期间面临的问题。叙述是录音的，和成绩单使用主题分析进行分析，以得出广泛的主题。
■确定了四个广泛的主题：与运输有关的问题，药物相关问题,与医生咨询有关的问题，诊断延迟。交通设施有限，公共交通和门诊单位缺乏适当的社会距离规范，人员在旅行中进行严格的搜身，在门诊就诊时对病毒传播的恐惧，当地市场上没有抗癫痫药物(ASM)，药房缺乏折扣，ASM品牌的变化，无法接受预定的诊断性调查是CWE父母提出的一些主要问题.
■CWE的父母在送往医院时遇到了麻烦，对ASM的访问不足，医生咨询的困难，以及第一次COVID-19大流行封锁期间诊断调查的延误。
