METHODS: Qualitative semi-structured interviews with patients (n = 14) with incurable gastrointestinal cancers of the oesophagus, pancreas, colon, or rectum were conducted and analysed using content analysis. Participants in the study were affiliated with PalMaGiC, an intervention in a gastroenterology department based on symptom assessment, care planning, care coordination, and needs-based follow-up.
RESULTS: Participants perceived the intervention as filling a gap and as a secure lifeline in the healthcare system since it provided 24-h access, a designated specialist nurse, and a patient-healthcare alliance. Using a needs-based approach, PalMaGiC changed the participants\' focus from disease to quality of life. Participants requested more open dialog within complementary and alternative medicine, greater focus on promoting hope and using need assessment questionnaires differently in assessing symptoms and problems.
CONCLUSIONS: The PalMaGiC intervention can potentially meet the needs of patients requiring palliative care in hospital departments, but further development of the content and personalised approach is needed.
方法:对无法治愈的食道癌患者(n=14)进行定性半结构化访谈,胰腺,结肠,或直肠进行了分析,使用内容分析。该研究的参与者隶属于PalMaGiC,根据症状评估对消化内科进行干预,护理规划,护理协调,以及基于需求的后续行动。
结果:参与者认为干预措施填补了空白,并且是医疗保健系统中的安全生命线,因为它提供了24小时的访问权限,指定的专科护士,和病人医疗联盟。使用基于需求的方法,PalMaGiC将参与者的关注点从疾病转移到生活质量。参与者要求在补充和替代医学中进行更多的公开对话,更加注重促进希望,并在评估症状和问题时不同地使用需求评估问卷。
结论:PalMaGiC干预有可能满足医院科室需要姑息治疗的患者的需求,但需要进一步发展内容和个性化方法。