PDF(Pubmed)
Abstract：
Background Clubfoot treatment requires a period of bracing until early childhood to maintain the initial correction achieved by Ponseti casting and serial manipulations. During this period, bracing compliance is the most important factor in preventing the relapse of clubfoot deformity. This period can be challenging for parents, given several factors that affect treatment adherence. In recent years, social media has opened up new ways to seek guidance from an online community, including health-focused areas such as congenital clubfoot. This study examines bracing-related concerns that arise during clubfoot treatment that lead caregivers to seek support from online forums like Facebook. Methodology Six Facebook clubfoot support groups with the highest number of clubfoot posts were evaluated to identify the relative proportion and content of posts related to bracing compliance during December 2021. Bracing-related concerns across all identified posts were then organized into the following six domains that may affect the child\'s bracing adherence: physical, psychological, commercial, social, bracing device-related, and parental. Results In December 2021, there were 442 total posts across the six clubfoot-focused Facebook groups analyzed. Of these, 23.1% of posts were directly related to bracing compliance. Approximately 22% of these posts had responses where at least one fellow parent suggested seeking advice from a healthcare professional. When these root concerns were organized into six domains that can affect the child\'s bracing compliance, we found 49 physical, 26 psychological, 5 commercial, 0 social, 14 bracing device-related, and 8 parental factors. Conclusions In this study, 23.1% of all analyzed Facebook posts involved discussion about brace-related concerns, making this a significant topic of discussion on online parental forums. Facebook groups create a community and provide emotional support to parents that support bracing compliance. Clubfoot physicians should be aware of key parental concerns related to bracing compliance, and physicians can provide education on bracing that provides accurate information and anticipatory counseling during regular check-ups with patients and their families.
摘要：
背景马蹄足治疗需要一段时间的支撑，直到儿童早期，以维持通过Ponseti铸造和连续操作实现的初始矫正。在此期间,支持依从性是防止马蹄内翻足畸形复发的最重要因素。这段时间对父母来说可能是个挑战，考虑到影响治疗依从性的几个因素。近年来,社交媒体开辟了寻求在线社区指导的新途径，包括以健康为重点的领域，如先天性马蹄内翻足。这项研究调查了马蹄足治疗期间出现的与支撑相关的问题，这些问题导致护理人员从Facebook等在线论坛寻求支持。方法在2021年12月期间，对六个马蹄足支持小组进行了评估，以确定与支撑依从性相关的相对比例和内容。然后将所有已确定的帖子中与支撑相关的问题组织到以下六个可能影响孩子的支撑依从性的领域中：身体，心理,商业,社会,与支撑装置相关的，和父母。结果在2021年12月，在分析的六个以马蹄为重点的Facebook群组中，共有442个帖子。其中,23.1%的职位与支持合规性直接相关。在这些帖子中，大约有22％的回复中，至少有一位父母建议向医疗保健专业人员寻求建议。当这些根源问题被组织成六个可能影响孩子的支撑合规性的领域时，我们发现了49个身体，26心理，5商业、0社交,14支撑装置相关，和8个父母因素。结论在这项研究中，在所有被分析的Facebook帖子中，有23.1%涉及与支架相关的问题。使这成为在线家长论坛上讨论的重要话题。Facebook团体创建了一个社区，并为支持合规性的父母提供情感支持。无尾足医生应该意识到父母与支撑依从性相关的主要担忧，医生可以提供有关支撑的教育，在定期对患者及其家人进行检查时提供准确的信息和预期的咨询。
