METHODS: This study applied a qualitative descriptive exploratory design using a patient journey mapping approach. Home care clients and their caregivers with a recent experience of a hospital discharge back to the community were recruited. A conventional inductive approach to analysis enabled the identification of categories and a collective patient journey map. Follow-up interviews supported the validation of the map.
RESULTS: Seven participants (five clients and two caregivers) participated in 11 interviews. Participants contributed to the production of a collective journey map and the following four categories and themes: (1) Touchpoints as interactions with the health system; Life is changing; (2) Pain points as barriers in the health system: Sensing nobody is listening and Trying to find a good fit; (3) Facilitators to positive care transitions: Developing relationships and gaining some continuity and Trying to advocate, and (4) Emotional impact: Having only so much emotional capacity.
CONCLUSIONS: The patient journey map enabled a collective illustration of the care transition depicted in touchpoints, pain points, enablers, and feelings experienced by home care recipients and their caregivers. Patient journey mapping offers an opportunity to acknowledge home care clients and their caregivers as critical to quality care delivery across the continuum.
方法:本研究采用患者旅程映射方法进行定性描述性探索性设计。招募了最近有出院经验的家庭护理客户及其护理人员回到社区。传统的归纳分析方法能够识别类别和集体患者旅程图。后续访谈支持地图的验证。
结果:七名参与者(五名客户和两名护理人员)参加了11次访谈。参与者为制作集体旅程图和以下四个类别和主题做出了贡献:(1)与卫生系统互动的接触点;生活在变化;(2)作为卫生系统障碍的痛点:感觉到没有人在倾听并试图找到合适的人选;(3)促进积极的护理过渡:发展关系并获得一定的连续性,并试图倡导,和(4)情感影响:只有这么多的情感能力。
结论:患者旅程图能够对接触点中描绘的护理过渡进行集体说明,痛点,启用者,以及家庭护理接受者及其护理人员所经历的感受。患者旅程映射提供了一个机会,以承认家庭护理客户及其护理人员对整个连续体的优质护理交付至关重要。