PDF(Pubmed)
Abstract：
UNASSIGNED: We aimed to describe the language and health-related quality of life (HRQoL) outcomes of children early-identified with unilateral or mild bilateral permanent hearing loss. This was a cross-sectional community-based study of children with mild bilateral or unilateral permanent hearing loss (including unilateral auditory neuropathy spectrum disorder (ANSD)), drawn from a population-based databank in Victoria, Australia.
UNASSIGNED: Enrolment in this databank is independent of early intervention and amplification approaches. Language and caregiver-reported HRQoL outcomes are described by type and degree of loss at three timepoints across child development: at age 2 years (n = 255), 5-7 years (n = 173) and 9-12 years (n = 45).
UNASSIGNED: Across all age groups, average language outcomes were poorer than population normative scores by between a half to two thirds of a standard deviation. Children with mild bilateral hearing loss demonstrated poorer average language outcomes than children with unilateral hearing loss, particularly at younger ages. Children with unilateral ANSD showed language outcomes comparable to their peers with unilateral profound hearing loss. Children had poorer HRQoL psychosocial scores compared to physical scores, without obvious patterns of outcomes linked to degree or type of hearing loss.
UNASSIGNED: This study demonstrates children with early-identified unilateral or mild bilateral hearing loss have average language and HRQoL outcomes poorer than population normative expectations from an early age. These outcomes are observed at later ages across childhood. These findings provide a contemporary description of language and quality of life outcomes for children identified but not targeted by universal newborn hearing screening and raise questions of how to provide better support for these populations of children and their families.
UNASSIGNED: Enrolment in this databank is independent of early intervention and amplification approaches. Language and caregiver-reported HRQoL outcomes are described by type and degree of loss at three timepoints across child development: at age 2 years (n = 255), 5-7 years (n = 173) and 9-12 years (n = 45).
UNASSIGNED: Across all age groups, average language outcomes were poorer than population normative scores by between a half to two thirds of a standard deviation. Children with mild bilateral hearing loss demonstrated poorer average language outcomes than children with unilateral hearing loss, particularly at younger ages. Children with unilateral ANSD showed language outcomes comparable to their peers with unilateral profound hearing loss. Children had poorer HRQoL psychosocial scores compared to physical scores, without obvious patterns of outcomes linked to degree or type of hearing loss.
UNASSIGNED: This study demonstrates children with early-identified unilateral or mild bilateral hearing loss have average language and HRQoL outcomes poorer than population normative expectations from an early age. These outcomes are observed at later ages across childhood. These findings provide a contemporary description of language and quality of life outcomes for children identified but not targeted by universal newborn hearing screening and raise questions of how to provide better support for these populations of children and their families.
摘要：
■我们旨在描述早期发现的单侧或轻度双侧永久性听力损失儿童的语言和健康相关生活质量（HRQoL）结果。这是一项针对轻度双侧或单侧永久性听力损失（包括单侧听觉神经病变谱系障碍（ANSD））儿童的横断面社区研究。来自维多利亚州基于人口的数据库，澳大利亚。
■该数据库中的注册与早期干预和扩增方法无关。语言和照顾者报告的HRQoL结果通过儿童发育的三个时间点的损失类型和程度来描述：2岁（n=255），5-7年（n=173）和9-12年（n=45）。
■在所有年龄段，平均语言结局比人口标准分数差一半到三分之二的标准差.轻度双侧听力损失的儿童表现出的平均语言结果比单侧听力损失的儿童差。特别是在年轻的时候。患有单侧ANSD的儿童表现出与患有单侧严重听力损失的同龄人相当的语言结果。与身体得分相比，儿童的HRQoL心理社会得分较差，没有明显的结果模式与听力损失的程度或类型有关。
这项研究表明，早期发现的单侧或轻度双侧听力损失的儿童，从早期开始，平均语言和HRQoL结果就比人群的正常预期差。这些结果在整个童年的后期观察到。这些发现为已确定但未被普遍新生儿听力筛查针对的儿童提供了语言和生活质量结果的当代描述，并提出了如何为这些儿童及其家庭提供更好支持的问题。
■该数据库中的注册与早期干预和扩增方法无关。语言和照顾者报告的HRQoL结果通过儿童发育的三个时间点的损失类型和程度来描述：2岁（n=255），5-7年（n=173）和9-12年（n=45）。
■在所有年龄段，平均语言结局比人口标准分数差一半到三分之二的标准差.轻度双侧听力损失的儿童表现出的平均语言结果比单侧听力损失的儿童差。特别是在年轻的时候。患有单侧ANSD的儿童表现出与患有单侧严重听力损失的同龄人相当的语言结果。与身体得分相比，儿童的HRQoL心理社会得分较差，没有明显的结果模式与听力损失的程度或类型有关。
这项研究表明，早期发现的单侧或轻度双侧听力损失的儿童，从早期开始，平均语言和HRQoL结果就比人群的正常预期差。这些结果在整个童年的后期观察到。这些发现为已确定但未被普遍新生儿听力筛查针对的儿童提供了语言和生活质量结果的当代描述，并提出了如何为这些儿童及其家庭提供更好支持的问题。
