PDF(Pubmed)
Abstract：
Recently, motorized mobility devices (or power mobility devices (PMDs)) have been introduced for infants and toddlers who lack the means for self-mobility. Previous reports have primarily focused on PMDs for individuals with cerebral palsy. Few have explored PMDs for individuals with neuromuscular diseases who have intellectual disabilities. This report presents a case study of the early introduction of a PMD for an infant with Fukuyama congenital muscular dystrophy and presents the results of an interview with the father regarding psychological aspects and the child\'s manipulative abilities. The PMD was introduced at the age of 1 year and 10 months, and the changes during the 19 months after the introduction were evaluated six times, using the Assessment of Learning Powered mobility use tool (ALP). A semi-structured interview with the father was conducted 19 months after the introduction. The ALP evaluation and the interview were conducted by one physical therapist and two physical therapy students, and the results were shared with the hospital\'s physical therapist and nurses at the nursing facility. This report provides a basis for expanding the scope of PMD use and for considering the family\'s involvement, especially for the child.
摘要：
最近,背景技术电动移动设备(或动力移动设备(PMD))已经被引入用于缺乏用于自我移动的装置的婴儿和幼儿。以前的报道主要集中在脑瘫患者的PMD上。很少有人探索患有智力障碍的神经肌肉疾病的个体的PMD。本报告提供了对福山先天性肌营养不良症婴儿早期引入PMD的案例研究，并介绍了与父亲就心理方面和孩子的操作能力进行访谈的结果。PMD是在1岁零10个月大的时候引入的，引入后19个月的变化被评估了6次，使用学习动力移动使用评估工具(ALP)。介绍后19个月，对父亲进行了半结构化采访。ALP评估和访谈由一名物理治疗师和两名物理治疗学生进行，结果与医院的物理治疗师和护理机构的护士分享。本报告为扩大PMD的使用范围和考虑家庭的参与提供了基础，尤其是对孩子。
