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Abstract：
We aimed to investigate (1) student-led clinics and (2) electronic patient-reported outcomes (ePROs) to accelerate diagnosis and treatment of patients with axial spondyloarthritis (axSpA). Patients with suspected axSpA completed an initial student-led clinic visit (T-1) prior to their planned actual rheumatologist visit (T0). Acceleration of patient appointment and NSAID therapy start, availability of diagnostic findings, and treatment response at T0 were evaluated. Beginning at T-1, patients completed electronic BASDAI questionnaires every 2 weeks. Concordance of paper-based and electronic BASDAI was evaluated. Patient acceptance of ePRO reporting and student-led clinics was measured using the net promoter score (NPS). 17/36 (47.2%) included patients were diagnosed with axSpA. Student-led clinics (T-1) significantly accelerated patient appointments by more than 2 months (T0, T-1, p < 0.0001) and axSpA guideline-conform NSAID treatment (p < 0.0001). At T0, diagnostic workup was completed for all patients and 7/17 (41.2%) axSpA patients presented with a clinically important improvement or were in remission. 34/36 (94.4%) patients completed at least 80% of the ePROs between T-1 and T0. Electronic and paper-administered BASDAI correlated well (r = 0.8 p < 0.0001). Student-led clinics and ePROs were well accepted by patients with NPS scores of + 62.0% (mean ± SD 9.2/10.0 ± 0.9) and + 30.5% (mean ± SD 8.0/10.0 ± 1.7), respectively. In conclusion, student-led clinics and ePRO monitoring were well accepted, accelerated diagnostic workup and treatment in patients with axSpA.
摘要：
我们旨在调查（1）由学生主导的诊所和（2）电子患者报告的结果（ePROs），以加速诊断和治疗轴性脊柱关节炎（axSpA）患者。疑似axSpA的患者在计划的实际风湿病专家访问（T0）之前完成了最初的学生主导的诊所访问（T-1）。加速患者预约和NSAID治疗开始，诊断结果的可用性，并评估T0时的治疗反应。从T-1开始，患者每2周完成一次电子BASDAI问卷。评估了纸质和电子BASDAI的一致性。使用净启动子评分（NPS）测量患者对ePRO报告和学生主导诊所的接受度。17/36（47.2%）患者被诊断为axSpA。以学生为主导的诊所（T-1）显着加快了患者的预约时间超过2个月（T0，T-1，p<0.0001），并且axSpA指南符合NSAID治疗（p<0.0001）。在T0时，所有患者均完成了诊断检查，7/17（41.2％）axSpA患者表现出临床上重要的改善或缓解。34/36（94.4％）患者在T-1和T0之间完成了至少80％的ePro。电子和纸质给药的BASDAI相关性良好(r=0.8p<0.0001)。NPS评分分别为+62.0%(平均值±SD9.2/10.0±0.9)和+30.5%(平均值±SD8.0/10.0±1.7),分别。总之,学生主导的诊所和ePRO监测被广泛接受，加速axSpA患者的诊断检查和治疗。
