Abstract：
Precision medicine aims to understand the mechanisms of diseases and to find treatments adapted to each individual or group of patients, on the basis of biological characteristics and environment. It uses new tools based on digital technologies. Narrative medicine was theorized, in the 2000s, as a reaction to the increasing technicality and the notion of a lack of human relations in care: It focuses on recognizing the essential place of the patient\'s experience of illness and life history in the diagnosis and management of diseases as well as in the training of caregivers. These two opposite currents are rarely considered together. In fact, they have in common the basic principle that each patient is unique, and both are often more closely intertwined than we think, especially in the field of child neurology. Five case histories and discussions presented here aim to demonstrate that combining the precision approach with the narrative approach can improve the diagnosis, treatment, classification, and understanding of neurological conditions, as well as enhance the dialog with families and make teaching more meaningful. Not only rare diseases but common problems, such as paroxysmal events, pain, epilepsy, intellectual disability, and autism spectrum disorder, are addressed from both perspectives.
摘要：
精准医学旨在了解疾病的机制，并找到适合每个个体或一组患者的治疗方法。根据生物学特性和环境。它使用基于数字技术的新工具。叙事医学是理论化的，在2000年代，作为对日益增加的技术性和缺乏人际关系护理概念的反应：它侧重于认识到患者的疾病经历和生活史在疾病诊断和管理以及护理人员培训中的重要地位。这两个相反的电流很少一起考虑。事实上,他们有一个共同的基本原则，即每个病人都是独一无二的，两者往往比我们想象的更紧密地交织在一起，尤其是在儿童神经病学领域。这里介绍的五个病例历史和讨论旨在证明将精确方法与叙事方法相结合可以改善诊断。治疗,分类，以及对神经系统状况的理解，以及加强与家庭的对话，使教学更有意义。不仅是罕见的疾病，还有常见的问题，比如阵发性事件，疼痛,癫痫,智力残疾,自闭症谱系障碍，从两个角度解决。
