Abstract：
OBJECTIVE: Social media has irreversibly impacted global interpersonal connectivity. This study aims to understand how information discussed in condition-specific communities, called \"subreddits,\" on the major social media platform Reddit, can improve education by medical providers.
METHODS: The top 50 Reddit posts in each subreddit\'s \"hot\" tab were retroactively screened from June 1, 2022. Posts written by those 18 and older who had the condition or were engaging in a better understanding of the condition were included in the analysis. In addition, posts were placed in 1 of 6 categories based on the redditors\' primary questions: social advice, health advice, providing health education or suggesting equipment, personal experience/progress, researchers recruiting patients for research, or others.
RESULTS: We identified 605 posts within 15 subreddits related to cranial neurosurgical topics including epilepsy, traumatic brain injury, stroke, brain tumors/cancer, seizures, hydrocephalus, cerebrospinal fluid leaks, Chiari malformations, aneurysms, pineal cysts, ataxia, and moyamoya. Asking for health advice was the most common form of information seeking across subreddits (53.6%), specifically treatment-related questions (41.0%). Redditors from r/epilepsy and r/seizures constituted 84.6% of nonsurgical treatment questions relating to antiepileptic dosing or side effects.
CONCLUSIONS: Cranial neurosurgical disease can overwhelm patients, leaving them with unaddressed questions. Reddit provides anonymity and camaraderie within condition-specific communities not found at the doctor\'s office. The ease of access to an Internet community may encourage redditors to seek health information online.
METHODS: The top 50 Reddit posts in each subreddit\'s \"hot\" tab were retroactively screened from June 1, 2022. Posts written by those 18 and older who had the condition or were engaging in a better understanding of the condition were included in the analysis. In addition, posts were placed in 1 of 6 categories based on the redditors\' primary questions: social advice, health advice, providing health education or suggesting equipment, personal experience/progress, researchers recruiting patients for research, or others.
RESULTS: We identified 605 posts within 15 subreddits related to cranial neurosurgical topics including epilepsy, traumatic brain injury, stroke, brain tumors/cancer, seizures, hydrocephalus, cerebrospinal fluid leaks, Chiari malformations, aneurysms, pineal cysts, ataxia, and moyamoya. Asking for health advice was the most common form of information seeking across subreddits (53.6%), specifically treatment-related questions (41.0%). Redditors from r/epilepsy and r/seizures constituted 84.6% of nonsurgical treatment questions relating to antiepileptic dosing or side effects.
CONCLUSIONS: Cranial neurosurgical disease can overwhelm patients, leaving them with unaddressed questions. Reddit provides anonymity and camaraderie within condition-specific communities not found at the doctor\'s office. The ease of access to an Internet community may encourage redditors to seek health information online.
摘要：
背景：社交媒体已经不可逆转地影响了全球人际联系。这项研究旨在了解在特定条件社区中讨论的信息，叫做“subreddits，“在主要的社交媒体平台Reddit上，可以改善医疗提供者的教育。
方法：从20221年6月1日起，对每个subreddit的“热”标签中排名前50位的Reddit帖子进行了追溯筛选。分析中包括了那些有这种情况或正在更好地了解这种情况的18岁及以上的人撰写的帖子。此外,根据redditors的主要问题，帖子被分为六类之一：社会建议，健康建议,提供健康教育或建议设备，个人经验/进步，研究人员招募患者进行研究，或其他人。
结果：确定了15个子项中的65个帖子与颅神经外科主题有关，包括癫痫,创伤性脑损伤,中风,脑肿瘤/癌症，癫痫发作,脑积水,脑脊液漏,Chiari畸形,动脉瘤,松果体囊肿,共济失调,还有moyamoya.寻求健康建议是整个subreddits中最常见的信息寻求形式(53.6%)，特别是与治疗相关的问题（41.0%）。来自r/癫痫和r/癫痫发作的Redditors占与抗癫痫给药或副作用有关的非手术治疗问题的84.6％。
结论：颅脑神经外科疾病可以使患者不堪重负，给他们留下了未解决的问题。Reddit在医生办公室找不到的特定条件社区中提供匿名性和友情。访问互联网社区的便利性可能会鼓励redditors在线寻求健康信息。
方法：从20221年6月1日起，对每个subreddit的“热”标签中排名前50位的Reddit帖子进行了追溯筛选。分析中包括了那些有这种情况或正在更好地了解这种情况的18岁及以上的人撰写的帖子。此外,根据redditors的主要问题，帖子被分为六类之一：社会建议，健康建议,提供健康教育或建议设备，个人经验/进步，研究人员招募患者进行研究，或其他人。
结果：确定了15个子项中的65个帖子与颅神经外科主题有关，包括癫痫,创伤性脑损伤,中风,脑肿瘤/癌症，癫痫发作,脑积水,脑脊液漏,Chiari畸形,动脉瘤,松果体囊肿,共济失调,还有moyamoya.寻求健康建议是整个subreddits中最常见的信息寻求形式(53.6%)，特别是与治疗相关的问题（41.0%）。来自r/癫痫和r/癫痫发作的Redditors占与抗癫痫给药或副作用有关的非手术治疗问题的84.6％。
结论：颅脑神经外科疾病可以使患者不堪重负，给他们留下了未解决的问题。Reddit在医生办公室找不到的特定条件社区中提供匿名性和友情。访问互联网社区的便利性可能会鼓励redditors在线寻求健康信息。
