Mesh : Humans Esophageal Atresia / diagnosis therapy complications Gastrointestinal Diseases / complications Quality of Life Tracheoesophageal Fistula / diagnosis surgery

来  源:   DOI:10.1038/s41575-023-00789-w

Abstract:
Oesophageal atresia-tracheoesophageal fistula (EA-TEF) is a common congenital digestive disease. Patients with EA-TEF face gastrointestinal, surgical, respiratory, otolaryngological, nutritional, psychological and quality of life issues in childhood, adolescence and adulthood. Although consensus guidelines exist for the management of gastrointestinal, nutritional, surgical and respiratory problems in childhood, a systematic approach to the care of these patients in adolescence, during transition to adulthood and in adulthood is currently lacking. The Transition Working Group of the International Network on Oesophageal Atresia (INoEA) was charged with the task of developing uniform evidence-based guidelines for the management of complications through the transition from adolescence into adulthood. Forty-two questions addressing the diagnosis, treatment and prognosis of gastrointestinal, surgical, respiratory, otolaryngological, nutritional, psychological and quality of life complications that patients with EA-TEF face during adolescence and after the transition to adulthood were formulated. A systematic literature search was performed based on which recommendations were made. All recommendations were discussed and finalized during consensus meetings, and the group members voted on each recommendation. Expert opinion was used when no randomized controlled trials were available to support the recommendation. The list of the 42 statements, all based on expert opinion, was voted on and agreed upon.
摘要:
食管闭锁-气管食管瘘(EA-TEF)是一种常见的先天性消化系统疾病。EA-TEF患者面临胃肠道,外科,呼吸,耳鼻喉科,营养,童年时期的心理和生活质量问题,青春期和成年期。尽管胃肠道管理存在共识指南,营养,儿童时期的手术和呼吸系统问题,在青春期对这些患者进行系统的护理,在过渡到成年期和成年期目前缺乏。国际食管闭锁网络(INoEA)过渡工作组的任务是制定统一的循证指南,以管理从青春期到成年期的并发症。关于诊断的42个问题,胃肠道的治疗和预后,外科,呼吸,耳鼻喉科,营养,制定了EA-TEF患者在青春期和过渡到成年后面临的心理和生活质量并发症。进行了系统的文献检索,并在此基础上提出了建议。在协商一致会议上讨论并最后确定了所有建议,小组成员对每项建议进行了投票。当没有随机对照试验支持该建议时,使用专家意见。42条声明的列表,都是基于专家的意见,投票通过并达成一致。
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