关键词: Cerebral palsy PedsQL 3.0 CP Module quality of life.

来  源:   DOI:10.5606/tftrd.2023.11462   PDF(Pubmed)

Abstract:
UNASSIGNED: This study was planned to test the reliability and validity of the Turkish version of the Pediatric Quality of Life Inventory (PedsQL) 3.0 cerebral palsy (CP) module (parent form) in children with CP.
UNASSIGNED: In the validation study conducted between June 2007 and June 2009, 511 children (299 normal children, 212 children with CP) were assessed by the seven scales of PedsQL [daily activities (DA), school activities (SA), movement and balance (MB), pain and hurt (PH), fatigue (F), eating activities (EA), and speech and communication (SC)]. Reliability was tested by internal consistency and person separation index (PSI); internal construct validity by Rasch analysis and external construct validity by correlation with the Gross Motor Function Classification System (GMFCS) and Functional Independence Measure for Children (WeeFIM).
UNASSIGNED: Only 13 children with CP completed the inventory by themselves and thus were excluded. Consequently, 199 children with CP (113 males, 86 females; mean age: 7.3±4.2 years; range, 2 to 18 years) and 299 normal children (169 males, 130 females; mean age: 9.4±4.0 years; range, 2 to 17 years) were included in the final analysis. Reliabilities of the seven scales of the PedsQL 3.0 CP module were adequate, with Cronbach\'s alphas between 0.66 and 0.96 and the PSI between 0.672 and 0.943 for the CP group. In Rasch analysis, for each scale, items showing disordered thresholds were rescored; then testlets were created to overcome local dependency. Internal construct validity of the unidimensional seven scales was good with the mean item fit of -0.107±1.149, 0.119±0.818, 0.232±1.069, -0.442±0.672, 0.221±0.554, -0.091±0.606, and -0.333±1.476 for DA, SA, MB, PH, F, EA, and SC, respectively. There was no differential item functioning. External construct validity of the instrument was confirmed by expected moderate to high correlations with WeeFIM and GMFCS (Spearman\'s r=0.35-0.89).
UNASSIGNED: Turkish version of the PedsQL 3.0 CP module is reliable, valid, and available for use in clinical setting to evaluate health-related quality of life of children with CP.
摘要:
这项研究计划测试土耳其版儿科生活质量量表(PedsQL)3.0脑瘫(CP)模块(父母形式)在CP患儿中的可靠性和有效性。
在2007年6月至2009年6月之间进行的验证研究中,有511名儿童(299名正常儿童,212名CP儿童)通过PedsQL[日常活动(DA)的七个量表进行评估,学校活动(SA),运动和平衡(MB),疼痛和伤害(PH),疲劳(F),饮食活动(EA),以及语音和通信(SC)]。通过内部一致性和人员分离指数(PSI)检验信度;通过Rasch分析进行内部构造效度,通过与粗大运动功能分类系统(GMFCS)和儿童功能独立性测量(WeeFIM)的相关性进行外部构造效度。
只有13名患有CP的儿童自己完成了清单,因此被排除在外。因此,199名CP儿童(113名男性,86名女性;平均年龄:7.3±4.2岁;范围,2至18岁)和299名正常儿童(169名男性,130名女性;平均年龄:9.4±4.0岁;范围,2至17年)纳入最终分析。PedsQL3.0CP模块的七个量表的可靠性是足够的,CP组Cronbach的阿尔法在0.66和0.96之间,PSI在0.672和0.943之间。在Rasch分析中,对于每个量表,显示无序阈值的项目被重新评分;然后创建testlet来克服本地依赖性。一维七个量表的内部构造效度良好,平均项目拟合度为-0.107±1.149、0.119±0.818、0.232±1.069、-0.442±0.672、0.221±0.554、-0.091±0.606和-0.333±1.476DA,SA,MB,PH,F,EA,SC,分别。没有差异项目运行。仪器的外部结构有效性通过与WeeFIM和GMFCS的预期中度到高度相关性得到证实(Spearman\'sr=0.35-0.89)。
土耳其版本的PedsQL3.0CP模块可靠,有效,并可用于临床,以评估CP儿童的健康相关生活质量。
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