关键词: Cerebral palsy participation in recreational activities self-advocacy voice well-being

Mesh : Child Humans Adolescent Cerebral Palsy Leisure Activities Communication

来  源:   DOI:10.1080/09638288.2023.2194680

Abstract:
UNASSIGNED: This paper authentically represents the voices of non-verbal children with cerebral palsy using a case study design. Policy suggests that children should have the right to play and leisure opportunities, however non-verbal children with cerebral palsy have fewer choices. Additionally, children with communication, learning and mobility limitations are usually excluded from research. The aim of this research was to capture the voices of non-verbal children by exploring their well-being impact in terms of their experiences and choices about their level of participation in recreational activities.
UNASSIGNED: A qualitative case series study included interviews, observations, photographs and diaries. Where possible, the diaries were completed by both caregivers and children. Data were analysed thematically, and the lens of positioning theory applied.
UNASSIGNED: Seven children aged nine to sixteen years participated. The findings showed how equipment, people and environments enabled or hindered the children\'s participation. The children also advocated as champions for their own well-being. Positioning theory was applied across the data and was adapted offering a way to better understand the children\'s well-being responses.
UNASSIGNED: The findings demonstrate how these children were able to self-advocate, demonstrating their well-being by their intentional behaviours from their level of participation in a recreational activity.
The voices of non-ambulant and non-verbal children are underrepresented in the literature. This study offers an innovative approach to highlight their voices using visual data. The images project the narrative about their choices for participation in recreational activities. The proposed kaleidoscope of well-being offers a way to demonstrate the fluctuations in their emotional responses from their participation.
摘要:
本文使用案例研究设计真实地代表了脑瘫非语言儿童的声音。政策建议,儿童应该有权利玩耍和休闲的机会,然而,患有脑瘫的非语言儿童的选择较少。此外,有沟通的孩子,学习和流动性限制通常被排除在研究之外。这项研究的目的是通过探索非语言儿童对他们参与娱乐活动的经历和选择的影响来捕捉他们的声音。
定性案例系列研究包括访谈,观察,照片和日记。在可能的情况下,日记是由照顾者和儿童完成的。数据进行了主题分析,以及定位理论的应用镜头。
7名9至16岁的儿童参加了比赛。研究结果表明,设备,人和环境启用或阻碍了儿童的参与。孩子们还倡导成为自己幸福的拥护者。定位理论在数据中应用,并进行了调整,提供了一种更好地理解儿童福祉反应的方法。
研究结果表明,这些孩子是如何能够自我倡导的,从他们参与娱乐活动的水平,通过他们的有意行为来展示他们的福祉。
在文献中,非流动和非语言儿童的声音没有得到充分的体现。这项研究提供了一种创新的方法来使用视觉数据突出他们的声音。这些图像投射了他们选择参加娱乐活动的叙事。拟议的万花筒幸福感提供了一种方法来证明他们参与的情绪反应的波动。对康复的影响对于患有脑瘫的非门诊和非语言儿童,参加娱乐活动的选择仍然有限。设计师和政策制定者应该考虑如何调整或创建设备和环境,以增加非流动和非语言儿童脑瘫的选择。健康和社会护理从业者应考虑如何倾听脑瘫非语言和非流动儿童及其父母/监护人的声音,并努力共同设定参与目标以确认他们的优势。
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