Abstract：
The importance of evaluating the self-esteem and quality of life of patients with a chronic disease has become increasingly relevant. The study describes self-esteem and quality of life outcomes in patients with neurogenic dysfunction and continent urinary diversions and/or antegrade enema procedures.
Cross-sectional observational study, including patients with neurogenic dysfunction who required a continent urinary diversion and/or an antegrade enema conduit during their treatment. The self-esteem evaluation was done with the Rosenberg scale and the quality of life with the KIDSCREEN-27 questionnaire.
socio-demographic, clinical and economic characteristics. Descriptive statistics were applied.
The mean age of the 9 patients was 15.6 years, the mean time elapsed from surgery to application of the questionnaires was 60.9 ± 37.1 months. With a perception of improvement in 8 of the 9 patients and a normal or higher self-esteem score in all cases. In the description of physical activity and health, it was found that 7 of the 9 young people presented a perception of good health in general. A considerable reduction in the use of diapers was achieved after the intervention, going from consuming 6.2 ± 1.4 diapers per day to only 1.7 ± 1.3 diapers per day.
Despite the sequelae, comorbidities and procedures, the results of self-esteem and quality of life in patients with neurogenic dysfunction are high.
Cross-sectional observational study, including patients with neurogenic dysfunction who required a continent urinary diversion and/or an antegrade enema conduit during their treatment. The self-esteem evaluation was done with the Rosenberg scale and the quality of life with the KIDSCREEN-27 questionnaire.
socio-demographic, clinical and economic characteristics. Descriptive statistics were applied.
The mean age of the 9 patients was 15.6 years, the mean time elapsed from surgery to application of the questionnaires was 60.9 ± 37.1 months. With a perception of improvement in 8 of the 9 patients and a normal or higher self-esteem score in all cases. In the description of physical activity and health, it was found that 7 of the 9 young people presented a perception of good health in general. A considerable reduction in the use of diapers was achieved after the intervention, going from consuming 6.2 ± 1.4 diapers per day to only 1.7 ± 1.3 diapers per day.
Despite the sequelae, comorbidities and procedures, the results of self-esteem and quality of life in patients with neurogenic dysfunction are high.
摘要：
目的：评估慢性病患者的自尊和生活质量变得越来越重要。该研究描述了患有神经源性功能障碍和大陆尿路改道和/或顺行灌肠程序的患者的自尊和生活质量。
方法：横断面观察研究，包括在治疗期间需要大陆尿流改道和/或顺行灌肠导管的神经源性功能障碍患者。使用Rosenberg量表进行自尊评估，并使用KIDSCREEN-27问卷进行生活质量评估。
方法：社会人口统计，临床和经济特点。采用描述性统计。
结果：9例患者的平均年龄为15.6岁，从手术到应用问卷的平均时间为60.9±37.1个月.在所有情况下，9名患者中的8名患者都有改善的感觉，并且自尊得分正常或更高。在对身体活动和健康的描述中，结果发现，9名年轻人中有7人总体上表现出良好的健康状况。干预后，尿布的使用量大大减少，从每天消耗6.2±1.4尿布到每天仅消耗1.7±1.3尿布。
结论：尽管有后遗症，合并症和程序，结果神经源性功能障碍患者的自尊和生活质量较高。
方法：横断面观察研究，包括在治疗期间需要大陆尿流改道和/或顺行灌肠导管的神经源性功能障碍患者。使用Rosenberg量表进行自尊评估，并使用KIDSCREEN-27问卷进行生活质量评估。
方法：社会人口统计，临床和经济特点。采用描述性统计。
结果：9例患者的平均年龄为15.6岁，从手术到应用问卷的平均时间为60.9±37.1个月.在所有情况下，9名患者中的8名患者都有改善的感觉，并且自尊得分正常或更高。在对身体活动和健康的描述中，结果发现，9名年轻人中有7人总体上表现出良好的健康状况。干预后，尿布的使用量大大减少，从每天消耗6.2±1.4尿布到每天仅消耗1.7±1.3尿布。
结论：尽管有后遗症，合并症和程序，结果神经源性功能障碍患者的自尊和生活质量较高。
