PDF(Pubmed)
Abstract：
UNASSIGNED: Chronic pain is a common feature of hypermobile Ehlers-Danlos Syndrome (hEDS), yet how patients assess and communicate their pain remains poorly understood. The objective of the present study was to explore the use of numeric pain assessment in individuals with hEDS, from a patient-centered perspective.
UNASSIGNED: Our analysis is based on in-depth qualitative interviews. The interviews were conducted over the phone. Our participants were patients living with hEDS (N = 35). Interviews were recorded, transcribed, and analyzed to identify factors related to their use of these pain assessment instruments.
UNASSIGNED: Three primary themes emerged from these data, namely, (1) confusion around the quantification of multidimensional pain, (2) the subjectivity of pain experience, and (3) a strategic use of assessments for practical purposes beyond the accurate representation of pain.
These results demonstrate the need for caution in relying exclusively on numeric pain assessment instruments. We conclude with a brief proposal for a clinical communication strategy that may help to address the limitations of numeric pain assessment that were identified in our interviews.
Chronic pain is a common feature of hypermobile Ehlers–Danlos Syndrome (hEDS), yet how patients assess and communicate their pain remains poorly understood.Clinicians should be aware that patients have difficulties with the Numeric Rating Scale (NRS) for at least three reasons: (1) confusion around the quantification of multidimensional pain, (2) the subjectivity of pain experience, and (3) a strategic use of assessments for practical purposes beyond the accurate representation of pain.Clinicians should use caution in relying exclusively on NRS instruments.Clinicians may benefit from using clinical communication strategies outlined in our paper, which may help to address the limitations of the NRS that were identified in our interviews.
UNASSIGNED: Our analysis is based on in-depth qualitative interviews. The interviews were conducted over the phone. Our participants were patients living with hEDS (N = 35). Interviews were recorded, transcribed, and analyzed to identify factors related to their use of these pain assessment instruments.
UNASSIGNED: Three primary themes emerged from these data, namely, (1) confusion around the quantification of multidimensional pain, (2) the subjectivity of pain experience, and (3) a strategic use of assessments for practical purposes beyond the accurate representation of pain.
These results demonstrate the need for caution in relying exclusively on numeric pain assessment instruments. We conclude with a brief proposal for a clinical communication strategy that may help to address the limitations of numeric pain assessment that were identified in our interviews.
Chronic pain is a common feature of hypermobile Ehlers–Danlos Syndrome (hEDS), yet how patients assess and communicate their pain remains poorly understood.Clinicians should be aware that patients have difficulties with the Numeric Rating Scale (NRS) for at least three reasons: (1) confusion around the quantification of multidimensional pain, (2) the subjectivity of pain experience, and (3) a strategic use of assessments for practical purposes beyond the accurate representation of pain.Clinicians should use caution in relying exclusively on NRS instruments.Clinicians may benefit from using clinical communication strategies outlined in our paper, which may help to address the limitations of the NRS that were identified in our interviews.
摘要：
■慢性疼痛是高流动性Ehlers-Danlos综合征（hEDS）的共同特征，然而，患者如何评估和沟通他们的疼痛仍然知之甚少。本研究的目的是探索数字疼痛评估在hEDS患者中的应用。从以患者为中心的角度来看。
■我们的分析是基于深入的定性访谈。采访是通过电话进行的。我们的参与者是患有hEDS的患者（N=35）。采访被记录下来，转录，并进行分析，以确定与使用这些疼痛评估工具相关的因素。
■从这些数据中出现了三个主要主题，即,(1)围绕多维疼痛量化的困惑，(2)痛苦体验的主体性,和（3）战略使用评估实际目的，而不是准确表示疼痛。
这些结果表明，在完全依赖数字疼痛评估工具时需要谨慎。最后，我们提出了一项临床沟通策略的简短建议，该策略可能有助于解决我们在访谈中发现的数字疼痛评估的局限性。
慢性疼痛是高流动性Ehlers-Danlos综合征（hEDS）的共同特征，然而，患者如何评估和沟通他们的疼痛仍然知之甚少。临床医生应该意识到，患者在使用数字评定量表（NRS）方面存在困难，原因至少有三个：（1）对多维疼痛的量化感到困惑，(2)痛苦体验的主体性,和（3）战略使用评估实际目的，而不是准确表示疼痛。临床医生在完全依赖NRS仪器时应谨慎使用。临床医生可能会受益于使用我们论文中概述的临床沟通策略，这可能有助于解决我们采访中发现的NRS的局限性。
■我们的分析是基于深入的定性访谈。采访是通过电话进行的。我们的参与者是患有hEDS的患者（N=35）。采访被记录下来，转录，并进行分析，以确定与使用这些疼痛评估工具相关的因素。
■从这些数据中出现了三个主要主题，即,(1)围绕多维疼痛量化的困惑，(2)痛苦体验的主体性,和（3）战略使用评估实际目的，而不是准确表示疼痛。
这些结果表明，在完全依赖数字疼痛评估工具时需要谨慎。最后，我们提出了一项临床沟通策略的简短建议，该策略可能有助于解决我们在访谈中发现的数字疼痛评估的局限性。
慢性疼痛是高流动性Ehlers-Danlos综合征（hEDS）的共同特征，然而，患者如何评估和沟通他们的疼痛仍然知之甚少。临床医生应该意识到，患者在使用数字评定量表（NRS）方面存在困难，原因至少有三个：（1）对多维疼痛的量化感到困惑，(2)痛苦体验的主体性,和（3）战略使用评估实际目的，而不是准确表示疼痛。临床医生在完全依赖NRS仪器时应谨慎使用。临床医生可能会受益于使用我们论文中概述的临床沟通策略，这可能有助于解决我们采访中发现的NRS的局限性。
